Reactions to and desire for prognostic testing in choroidal melanoma patients.

Reactions to and desire for prognostic testing in choroidal melanoma patients.
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DOI:
10.1007/s10897-009-9223-2
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发表时间:
2009-06
影响因子:
1.9
通讯作者:
Burgess BL
Burgess BL
中科院分区:
医学4区
文献类型:
--
作者:
Beran TM;McCannel TA;Stanton AL;Straatsma BR;Burgess BL

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确定脉络膜黑色素瘤患者是否需要细胞遗传学预后信息。99名脉络膜黑色素瘤患者完成了一份关于他们接受预后信息的意见的问卷调查。在接受细胞遗传学检测的患者中评估了预后信息的感知有用性。抑郁症状,生活质量,并在测试接收支持咨询的兴趣进行了评估。97%的受访者报告说,他们会希望在他们的治疗和98%的受访者报告说,支持性咨询时,预后信息提供的预后信息。与预后较差的患者相比,预后较好的患者更倾向于支持细胞遗传学检测的有效性。心理状态没有显着变化的功能,细胞遗传学测试结果。预后信息是重要的脉络膜黑色素瘤患者,即使在缺乏预防措施,可能会改善预后。
To determine if choroidal melanoma patients want cytogenetic prognostic information. Ninety-nine choroidal melanoma patients completed a questionnaire regarding their opinions about receiving prognostic information. The perceived usefulness of prognostic information was evaluated in patients who had undergone cytogenetic testing. Depressive symptoms, quality of life, and interest in supportive counseling during test receipt were assessed. Ninety-seven percent of respondents reported that they would have wanted prognostic information at the time of their treatment and 98% of respondents reported that supportive counseling should be offered when prognostic information is given. Patients who had received a more favorable prognostic result were more likely to endorse the usefulness of cytogenetic testing than were patients who had received a less favorable prognostic result. Psychological status did not vary significantly as a function of cytogenetic test result. Prognostic information was important to patients with choroidal melanoma, even in the absence of prophylactic measures which might improve prognosis.
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