Isolation in Coordination: Challenges of Caregivers in the USA

Isolation in Coordination: Challenges of Caregivers in the USA
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协调中的孤立:美国护理人员面临的挑战

DOI:
10.1145/3411764.3445413
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发表时间:
2021
期刊:
Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems
影响因子:
--
通讯作者:
Lauren Wilcox
Lauren Wilcox
中科院分区:
--
文献类型:
--
作者:
M. Schurgin;Mark S. Schlager;Laura M. Vardoulakis;Laura R. Pina;Lauren Wilcox

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随着全球人口老龄化以及慢性病和急性感染的流行率上升,了解多种形式的体力劳动并创建支持它们的社会技术系统变得势在必行。在本文中,我们报告了一项大型调查研究的结果与2000年在美国的非正式照顾者,强调了基本的挑战,不同类型的照顾者面临的协调照顾与他人。我们的研究结果支持先前关于照顾者协调挑战的研究结果,同时也提供了对影响照顾协调挑战程度的情境和中介因素的见解。这些中介因素包括照顾者的关系,获得各种资源,包括身体,社会和经济支持,以及身体和精神障碍。我们讨论了这些挑战和调解因素,并结束了讨论如何在未来的社会技术系统的设计中考虑它们。
As the global population ages and the prevalence of chronic conditions and acute infections rise, it is becoming imperative to understand the many forms of caregiving labor and create sociotechnical systems that support them. In this paper, we report results of a large survey study with 2000 informal caregivers in the USA, highlighting the fundamental challenges that different types of caregivers face when coordinating care with others. Our findings support previous findings on caregivers’ coordination challenges, while also offering insights into the situational, mediating factors that influence the extent to which care coordination challenges are felt. These mediating factors include caregivers’ relationships, access to a variety of resources including physical, social, and financial support, and physical and mental barriers. We discuss these challenges and mediating factors, and conclude with a discussion on how they can be considered in the design of future sociotechnical systems.
以工人为中心的设计:扩展支持劳动力的人机交互方法
DOI: 10.1145/3334480.3375157
发表时间: 2020
期刊: ACM CHI 2020
影响因子: --
作者:
Fox, Sarah E.;Khovanskaya, Vera;Crivellaro, Clara;Salehi, Niloufar;Dombrowski, Lynn;Kulkarni, Chinmay;Irani, Lilly;Forlizzi, Jodi
通讯作者: Forlizzi, Jodi