Quality of life and work productivity impairment among psoriasis patients: findings from the National Psoriasis Foundation survey data 2003-2011.
Quality of life and work productivity impairment among psoriasis patients: findings from the National Psoriasis Foundation survey data 2003-2011.
复制标题
DOI：
10.1371/journal.pone.0052935
复制
发表时间：
2012
期刊：
影响因子：
3.7
通讯作者：
Bebo B
中科院分区：
文献类型：
--
作者：
Armstrong AW;Schupp C;Wu J;Bebo B
确定银屑病和银屑病关节炎患者的生活质量和工作效率是否受到损害。从 2003 年到 2011 年，国家银屑病基金会通过电子邮件和电话通信收集了银屑病和银屑病关节炎患者的调查数据。调查数据收集自美国普通社区的银屑病和银屑病关节炎患者的生活质量，重点关注情绪影响（愤怒、沮丧、无助等）和身体影响（疼痛、瘙痒、身体刺激等）；就业状况。这些调查是通过从超过 75,000 名患者的数据库中随机抽样参与者来进行的。从 2003 年到 2011 年，共有 5,604 名患者完成了调查。银屑病和银屑病关节炎影响了 88% 患者的整体情绪健康，并干扰了 82% 患者的生活享受。大多数患者表示经历过愤怒（89%）、沮丧（89%）、无助（87%）、尴尬（87%）和难为情（89%）。许多患者还主动隐瞒疾病的身体表现（83%），并经常出现疼痛（83%）和瘙痒（93%）。值得注意的是，12% 的患者失业，11% 从事兼职工作。在失业患者中，92% 的人认为牛皮癣和/或牛皮癣关节炎是不工作的唯一原因。在工作的患者中，49% 的人因牛皮癣而经常缺勤。与轻度银屑病患者相比，调整年龄和性别后，重度银屑病患者的失业几率高出 1.8 倍（调整后 OR = 1.7，95% CI 1.4–2.3）。银屑病和银屑病关节炎患者的生活质量和工作效率持续受到显着损害。
To ascertain impairment in quality of life and work productivity among patients with psoriasis and psoriatic arthritis. From 2003 through 2011, the National Psoriasis Foundation collected survey data from patients with psoriasis and psoriatic arthritis via email and telephone correspondences. Survey data were collected from psoriasis and psoriatic arthritis patients in the general community in the U.S. Quality of life focusing on emotional impact (anger, frustration, helplessness, etc.) and physical impact (pain, pruritus, physical irritation, etc.); employment status. The surveys were performed through random sampling of participants from a database of over 75,000 patients. From 2003 to 2011, 5,604 patients completed the surveys. Psoriasis and psoriatic arthritis affected overall emotional wellbeing in 88% of patients, and they interfered with enjoyment of life in 82%. Most patients reported experiencing anger (89%), frustration (89%), helplessness (87%), embarrassment (87%), and self-consciousness (89%). Many patients also actively concealed physical manifestations of their diseases (83%), and experienced pain (83%) and pruritus (93%) regularly. Of note, 12% of patients were unemployed, and 11% worked part-time. Among unemployed patients, 92% cited psoriasis and/or psoriatic arthritis as the sole reasons for not working. Among working patients, 49% missed work days regularly due to psoriasis. Compared to patients with mild psoriasis, patients with severe psoriasis have 1.8 times greater odds to be unemployed after adjusting for age and gender (Adjusted OR = 1.7, 95% CI 1.4–2.3). Patients with psoriasis and psoriatic arthritis continue to experience significant impairment of quality of life and work productivity.
登录
查看更多内容
DOI：
10.1046/j.1087-0024.2003.09102.x
发表时间：
2004-03-01
影响因子：
--
作者：
Stern, RS;Nijsten, T;Rolstad, T
通讯作者：
Rolstad, T
DOI：
10.1111/j.1468-3083.2009.03221.x
发表时间：
2009-08-01
影响因子：
9.2
作者：
Ortonne, J. P.;Ganslandt, C.;Segaert, S.
通讯作者：
Segaert, S.
影响因子：
3.4
作者：
SchmidOtt, G;Jaeger, B;Lamprecht, F
通讯作者：
Lamprecht, F
影响因子：
--
作者：
Pariser, David M.;Bagel, Jerry;Horn, Elizabeth J.
通讯作者：
Horn, Elizabeth J.
影响因子：
13.8
作者：
Kimball, Alexa Boer;Yu, Andrew P;Mulani, Parvez M
通讯作者：
Mulani, Parvez M