Involvement and burden of informal caregivers of patients with mental illness: the mediating role of affiliated stigma.
Involvement and burden of informal caregivers of patients with mental illness: the mediating role of affiliated stigma.
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DOI：
10.1186/s12888-023-04553-x
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发表时间：
2023-01-26
期刊：
影响因子：
4.4
通讯作者：
Ashaba S
中科院分区：
文献类型：
--
作者：
Kaggwa MM;Najjuka SM;Mamun MA;Griffiths MD;Nyemara N;Ashaba S
对精神疾病的恐惧和缺乏理解可能会导致耻辱。精神疾病的耻辱不仅影响到患有精神疾病的个人，也影响到照顾者。照顾者的耻辱可能会导致延迟寻求治疗，对治疗的坚持程度不高，并有很高的复发风险。精神疾病患者的照顾者由于受到耻辱的负担和照顾的负担而面临更大的痛苦风险。照顾者负担的增加可以导致照顾者参与的减少。照顾者的参与、负担和相关的污名之间存在联系。本研究调查了附属污名在乌干达住院精神疾病患者的非正式照顾者的照顾者负担和参与之间的关系中的中介作用。对428名非正式照顾者(平均年龄：39.6岁[SD±14.6]；女性=62.1%)进行了横断面研究。收集了有关社会人口学特征、相关污名以及非正式照顾者的参与和负担的信息。研究结果表明，附属污名在照顾者的角色和参与之间起完全的中介作用(β=15.97p<；0.001)。女性增加了照顾者的照看负担(β=-0.23，p<；0.001)。本研究的结果表明，应对精神疾病患者照顾者相关污名的干预措施应纳入主流精神卫生保健，以减轻照顾者的负担。网上版载有补充材料，可在10.1186/s12888-023-04553-x查阅。
The fear and lack of understanding of mental illness can lead to stigma. The stigma of mental illness affects not only individuals who suffer from it, but also the caregivers. Stigma among caregivers can lead to delay in seeking care, poor adherence to treatment and a high risk of relapse. Caregivers of patients with mental illness are at an increased risk of distress due to the burden to stigma and caregiving burden. An increase in caregivers’ burden can lead to a reduction in caregivers’ involvement. There is a relationship between caregivers’ involvement, burden, and affiliated stigma. The present study examined the mediating role of affiliated stigma in the relationship between caregivers’ burden and involvement among informal caregivers of hospital-admitted patients with mental illness in Uganda. A cross-sectional study was conducted among 428 informal caregivers (mean age: 39.6 years [SD±14.6]; females = 62.1%). Information was collected regarding sociodemographic characteristics, affiliated stigma, and the involvement and burden of informal caregivers. The findings indicate that affiliated stigma serves as a full mediator between the caregiver’s roles and involvement (β=15.97, p<0.001). Being female increased the caregivers’ burden of caregiving (β= -0.23, p<0.001). The findings in the present study suggest that intervention to address affiliated stigma among caregivers of patients with mental illness should be incorporated into mainstream mental health care to reduce the caregiving burden. The online version contains supplementary material available at 10.1186/s12888-023-04553-x.
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