Optimizing the measurement of health-related quality of life in adolescents and young adults with cancer.

Optimizing the measurement of health-related quality of life in adolescents and young adults with cancer.
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DOI:
10.1002/cncr.33155
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发表时间:
2020-11-15
期刊:
影响因子:
6.2
通讯作者:
Reeve BB
Reeve BB
中科院分区:
医学1区
文献类型:
--
作者:
Salsman JM;Danhauer SC;Moore JB;Canzona MR;Victorson DE;Zebrack BJ;Reeve BB

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到目前为止,现有的患者报告结局(PRO)指标无法一致且不完全地捕获青少年和年轻人(AYA)癌症患者的健康相关生活质量体验。美国国立卫生研究院患者报告结局测量信息系统(PROMIS)代表了PRO测量科学的最新技术水平,并为解决这些测量挑战和促进未来以患者为中心的AYA肿瘤学研究提供了最佳方法。
To date, the health‐related quality of life experiences of adolescents and young adults (AYA) with cancer have been inconsistently and incompletely captured by existing patient‐reported outcome (PRO) measures. The National Institutes of Health Patient‐Reported Outcomes Measurement Information System (PROMIS) represents the state of the art for measurement science of PROs and provides an optimal approach for addressing these measurement challenges and catalyzing future patient‐centered research in AYA oncology.
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