A conceptual model and key variables for guiding supportive interventions for family caregivers of people receiving palliative care

A conceptual model and key variables for guiding supportive interventions for family caregivers of people receiving palliative care
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用于指导接受姑息治疗的家庭护理人员的支持性干预的概念模型和关键变量

DOI:
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发表时间:
2003
影响因子:
2.2
通讯作者:
P. Hudson
P. Hudson
中科院分区:
医学3区
文献类型:
--
作者:
P. Hudson

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根据世界卫生组织,在需要姑息治疗时,应将病人和家属视为“护理单位”。因此,家庭照顾者应该得到卫生专业人员的最佳支持性护理。然而,支持一个垂死的亲属的影响往往被描述为具有负面的身体和心理社会后果。此外,家庭照顾者不断报告未满足的需求,并且缺乏公布的严格的支持性干预措施。此外,缺乏全面的概念框架,以导航的家庭照顾者的经验和指导干预措施的发展。本文借鉴Lazarus和Folkman的开创性工作的交易压力和应对框架,提出了一个概念模型,具体到接受姑息治疗的患者的家庭照顾者。提供了一个全面的关键变量,以帮助了解家庭照顾者的经验和干预设计。
According to the World Health Organization, the patient and family should be viewed as the “unit of care” when palliative care is required. Therefore family caregivers should receive optimal supportive care from health professionals. However, the impact of supporting a dying relative is frequently described as having negative physical and psychosocial sequalae. Furthermore, family caregivers consistently report unmet needs and there has been a dearth of rigorous supportive interventions published. In addition, comprehensive conceptual frameworks to navigate the family caregiver experience and guide intervention development are lacking. This article draws on Lazarus and Folkman's seminal work on the transactional stress and coping framework to present a conceptual model specific to family caregivers of patients receiving palliative care. A comprehensive account of key variables to aid understanding of the family caregiver experience and intervention design is provided.
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