'Walk a mile in my shoes:' African American caregiver perceptions of caregiving and self-care.
'Walk a mile in my shoes:' African American caregiver perceptions of caregiving and self-care.
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DOI：
10.1080/13557858.2020.1734777
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发表时间：
2022-03
影响因子：
3.1
通讯作者：
Barnes, Lisa L.
中科院分区：
文献类型：
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作者：
Cothran, Fawn A.;Paun, Olimpia;Strayhorn, Shaila;Barnes, Lisa L.
关键词：
干预研究对非裔美国人阿尔茨海默病和相关痴呆症 (ADRD) 家庭照顾者的心理和身体健康结果存在不一致的证据。 ADRD 护理造成的压力，加上有据可查的非裔美国人的健康差异，使这些护理人员面临更高的发病和死亡风险。本研究的目的是探讨非裔美国 ADRD 家庭护理人员对护理和自我护理的看法。定性描述性研究基于对现任/前非裔美国 ADRD 社区居住家庭护理人员进行有目的样本的单独、一次性、半结构化访谈。参与者同意进行 60-90 分钟的面对面或电话采访。对 21 名看护者进行了访谈，对象主要是成年儿童（平均年龄 = 62.61 (SD = 12.88)；81% 完成大学学业；57% 为女性）。内容分析产生了三个主要主题：压力源、资源和应对。结果表明，社会文化和环境压力源以及资源认知之间存在复杂的相互作用，影响着护理人员为应对护理体验而采取的应对策略。这些发现提出了更广阔的视野，可以进一步为干预措施的开发和测试提供信息，以解决非裔美国 ADRD 护理人员的健康结果和护理需求。
African American Alzheimer’s disease and related dementia (ADRD) family caregivers are understudied in intervention research with discrepant evidence existing on their mental and physical health outcomes. The stress toll of ADRD caregiving, coupled with the well-documented health disparities for African Americans, place these caregivers at higher risk for morbidity and mortality. The purpose of this study was to explore African American ADRD family caregivers’ perceptions of caregiving and self-care. Qualitative descriptive study based on individual, one-time, semi-structured interviews from a purposeful sample of current/former African American ADRD community-dwelling family caregivers. Participants agreed to either face-to-face or telephonic interviews between 60–90 minutes in length. Twenty-one caregiver interviews were conducted with primarily adult children (mean age = 62.61 (SD=12.88); 81% completed college; 57% women). Content analysis yielded three major themes: Stressors, Resources, and Coping. The results demonstrate a complex interaction of sociocultural and environmental stressors and perceptions of resources that influence the coping strategies adopted by caregivers to navigate their caregiving experience. These findings suggest a broadened perspective to further inform the development and testing of interventions to address the health outcomes and caregiving needs of African American ADRD caregivers.
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影响因子：
6.3
作者：
Elliott AF;Burgio LD;Decoster J
通讯作者：
Decoster J
影响因子：
1.8
作者：
Cothran FA;Paun O;Farran CJ;Barnes LL
通讯作者：
Barnes LL
影响因子：
3.7
作者：
Gitlin, LN;Belle, SH;Ory, MG
通讯作者：
Ory, MG
影响因子：
5.7
作者：
Burgio, L;Stevens, A;Haley, WE
通讯作者：
Haley, WE
影响因子：
14
作者：
通讯作者：
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