Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies.

Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies.
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DOI:
10.1186/s12911-016-0359-3
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发表时间:
2016-09-15
影响因子:
3.5
通讯作者:
Mair FS
Mair FS
中科院分区:
医学3区
文献类型:
--
作者:
O'Connor S;Hanlon P;O'Donnell CA;Garcia S;Glanville J;Mair FS

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患者和公众可以使用多种类型的数字健康干预措施 (DHI),但许多因素会影响他们参与和注册的能力。本系统综述旨在识别和综合有关 DHI 参与和招募的障碍和促进因素的定性文献,为未来的实施工作提供信息。在 PubMed、MEDLINE、CINAHL、Embase、Scopus 和 ACM 数字图书馆中检索了 2000 年至 2015 年的英语定性研究,这些研究讨论了影响一系列 DHI 参与和注册的因素(例如“远程医疗”、“移动应用程序”、“个人健康记录”、“社交网络”)。使用文本挖掘和其他搜索策略来识别 1,448 条记录。两名审稿人独立进行论文筛选、质量评估、数据提取和分析。根据标准化过程理论和治疗负担理论,使用框架合成对数据进行分析,帮助概念化结果的解释。审查中纳入了 19 种出版物。出现了影响患者和公众参与以及 DHI 注册的四个总体主题; 1)个人能动性和动机; 2)个人生活和价值观; 3)聘用和招聘方式; 4) DHI 的质量。该审查还总结了所使用的参与和招聘策略。开发了初步的数字健康参与模型 (DIEGO),以突出所涉及的关键流程。确定了现有的知识差距,并为未来的研究提出了一些建议。研究局限性包括英语出版物和排除灰色文献。本次审查总结并强调了数字医疗参与和招募流程的复杂性,并概述了患者和公众致力于数字医疗并有效实施之前需要解决的问题。需要做更多的工作来创建成功的参与策略和更高质量的数字解决方案,这些解决方案尽可能个性化,并在适当的时候获得临床认证和认可。还需要更多的投资来提高计算机素养,并确保那些希望注册的人能够获得并负担得起技术。国际前瞻性系统评价注册库 CRD42015029846 本文的在线版本 (doi:10.1186/s12911-016-0359-3) 包含补充材料,可供授权用户使用。
Numerous types of digital health interventions (DHIs) are available to patients and the public but many factors affect their ability to engage and enrol in them. This systematic review aims to identify and synthesise the qualitative literature on barriers and facilitators to engagement and recruitment to DHIs to inform future implementation efforts. PubMed, MEDLINE, CINAHL, Embase, Scopus and the ACM Digital Library were searched for English language qualitative studies from 2000 – 2015 that discussed factors affecting engagement and enrolment in a range of DHIs (e.g. ‘telemedicine’, ‘mobile applications’, ‘personal health record’, ‘social networking’). Text mining and additional search strategies were used to identify 1,448 records. Two reviewers independently carried out paper screening, quality assessment, data extraction and analysis. Data was analysed using framework synthesis, informed by Normalization Process Theory, and Burden of Treatment Theory helped conceptualise the interpretation of results. Nineteen publications were included in the review. Four overarching themes that affect patient and public engagement and enrolment in DHIs emerged; 1) personal agency and motivation; 2) personal life and values; 3) the engagement and recruitment approach; and 4) the quality of the DHI. The review also summarises engagement and recruitment strategies used. A preliminary DIgital Health EnGagement MOdel (DIEGO) was developed to highlight the key processes involved. Existing knowledge gaps are identified and a number of recommendations made for future research. Study limitations include English language publications and exclusion of grey literature. This review summarises and highlights the complexity of digital health engagement and recruitment processes and outlines issues that need to be addressed before patients and the public commit to digital health and it can be implemented effectively. More work is needed to create successful engagement strategies and better quality digital solutions that are personalised where possible and to gain clinical accreditation and endorsement when appropriate. More investment is also needed to improve computer literacy and ensure technologies are accessible and affordable for those who wish to sign up to them. International Prospective Register of Systematic Reviews CRD42015029846 The online version of this article (doi:10.1186/s12911-016-0359-3) contains supplementary material, which is available to authorized users.
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