Needs, priorities, and attitudes of individuals with spinal cord injury toward nerve stimulation devices for bladder and bowel function: a survey.
Needs, priorities, and attitudes of individuals with spinal cord injury toward nerve stimulation devices for bladder and bowel function: a survey.
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DOI：
10.1038/s41393-020-00545-w
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发表时间：
2020-11
期刊：
影响因子：
2.2
通讯作者：
Wierbicky J
中科院分区：
文献类型：
--
作者：
Bourbeau D;Bolon A;Creasey G;Dai W;Fertig B;French J;Jeji T;Kaiser A;Kouznetsov R;Rabchevsky A;Santacruz BG;Sun J;Thor KB;Wheeler T;Wierbicky J
调查。调查脊髓损伤患者在管理神经源性膀胱和肠道功能方面的需求和优先顺序，并确定他们是否愿意为这些功能采取神经调节干预措施。匿名在线调查。它通过社区影响力人士和社交媒体的口口相传以及倡导团体的时事通讯进行广告宣传。370名受访者(27%为女性，73%为男性)的回答被纳入其中。无导尿管膀胱排空是恢复膀胱功能的首要任务，保持大便控制是恢复肠道功能的首要任务。关于外部刺激系统最大的担忧是佩戴一种设备，该设备的电线连接到皮肤上的电极，并且每天必须根据需要穿戴和脱下该系统。植入系统最大的担忧是植入物出现问题的可能性，需要翻修手术或手术移除整个系统。受访者愿意接受外部(61%)或植入(41%)的装置来改善膀胱或肠道功能。对于回答我们调查的脊髓损伤患者来说，膀胱和肠道功能障碍仍然是尚未满足的重要挑战。考虑到潜在的好处，这些人愿意接受神经刺激方法的一些潜在风险。额外的消费者投入对于指导研究和翻译到临床使用和个性化药物至关重要。
Survey. To investigate the needs and priorities of people with spinal cord injury for managing neurogenic bladder and bowel function and to determine their willingness to adopt neuromodulation interventions for these functions. Anonymous online survey. It was advertised by word-of-mouth by community influencers and social media, and by advertisement in newsletters of advocacy groups. Responses from 370 individuals (27% female, 73% male) were included. Bladder emptying without catheters was the top priority for restoring bladder function, and maintaining fecal continence was the top priority for restoring bowel function. The biggest concerns regarding external stimulation systems were wearing a device with wires connecting to electrodes on the skin and having to don and doff the system daily as needed. The biggest concerns for implanted systems were the chances of experiencing problems with the implant that required a revision surgery or surgical removal of the whole system. Respondents were willing to accept an external (61%) or implanted (41%) device to achieve improved bladder or bowel function. Bladder and bowel dysfunction remain important unmet challenges for individuals living with SCI who answered our survey. These individuals are willing to accept some potential risks of nerve stimulation approaches given potential benefits. Additional consumer input is critical for guiding both research and translation to clinical use and personalized medicine.
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