How NFTs could transform health information exchange.

How NFTs could transform health information exchange.
复制标题

DOI:
10.1126/science.abm2004
复制
发表时间:
2022-02-04
期刊:
Science (New York, N.Y.)
影响因子:
--
通讯作者:
--
中科院分区:
其他
文献类型:
--
作者:

文献摘要

参考文献

被引文献

相似文献

个人(有时称为“受保护”)健康信息 (PHI) 受到高度重视,并且随着大数据和机器学习走向医疗保健和转化研究的前沿,它将变得至关重要。当前的健康信息交换(HIE)市场由商业和(在较小程度上)非营利实体主导,通常不包括患者。这可能会破坏信任并刺激共享数据。患者在决定共享哪些数据、与谁共享以及在什么条件下共享方面的权力有限。在此背景下,新形式的数字所有权可以激发患者控制的健康数据的数字市场。我们认为,不可替代代币 (NFT) 或类似 NFT 的框架可以帮助激励 HIE 建立一个更加民主化、透明和高效的系统,在该系统中,患者可以参与有关如何以及与谁共享其 PHI 的决策。
Personal (sometimes called “protected”) health information (PHI) is highly valued and will become centrally important as big data and machine learning move to the forefront of health care and translational research. The current health information exchange (HIE) market is dominated by commercial and (to a lesser extent) not-for-profit entities and typically excludes patients. This can serve to undermine trust and create incentives for sharing data . Patients have limited agency in deciding which of their data is shared, with whom, and under what conditions. Within this context, new forms of digital ownership can inspire a digital marketplace for patient-controlled health data. We argue that nonfungible tokens (NFTs) or NFT-like frameworks can help incentivize a more democratized, transparent, and efficient system for HIE in which patients participate in decisions about how and with whom their PHI is shared.
DOI: 10.1136/medethics-2019-105963
发表时间: 2020-05-04
影响因子: 4.1
作者:
Porsdam Mann S;Savulescu J;Ravaud P;Benchoufi M
通讯作者: Benchoufi M
DOI: 10.1177/1073110519840480
发表时间: 2019-03-01
影响因子: 2.1
作者:
McGuire, Amy L.;Majumder, Mary A.;Cook-Deegan, Robert
通讯作者: Cook-Deegan, Robert
DOI: 10.1371/journal.pone.0229044
发表时间: 2020-03-11
期刊: PLOS ONE
影响因子: 3.7
作者:
Briscoe, Forrest;Ajunwa, Ifeoma;McCormick, Jennifer
通讯作者: McCormick, Jennifer
DOI: 10.1038/s41467-019-10933-3
发表时间: 2019-07-23
影响因子: 16.6
作者:
Rocher, Luc;Hendrickx, Julien M.;De Montjoye, Yves-Alexandre
通讯作者: De Montjoye, Yves-Alexandre
DOI: 10.1038/s41746-020-00323-1
发表时间: 2020-09-14
影响因子: 15.2
作者:
Rieke, Nicola;Hancox, Jonny;Cardoso, M. Jorge
通讯作者: Cardoso, M. Jorge