Preserving women's reproductive autonomy while promoting the rights of people with disabilities?: the case of Heidi Crowter and Maire Lea-Wilson in the light of NIPT debates in England, France and Germany.
Preserving women's reproductive autonomy while promoting the rights of people with disabilities?: the case of Heidi Crowter and Maire Lea-Wilson in the light of NIPT debates in England, France and Germany.
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DOI：
10.1136/medethics-2021-107912
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发表时间：
2023-07
影响因子：
4.1
通讯作者：
Horn, Ruth
中科院分区：
文献类型：
--
作者：
Perrot, Adeline;Horn, Ruth
2021年7月，英国高等法院审理了CO/2066/2020号案件，该案涉及患有唐氏综合症的海蒂·克劳特和儿子艾丹患有唐氏综合症的马雷·利亚-威尔逊的申请。在残疾人权利运动‘不要把我们排除在外’的支持下，克劳特和莉亚-威尔逊一直在对英国卫生和社会关怀大臣(英国政府)采取法律行动，要求对1967年的《堕胎法》进行审查：废除第1(1)(D)条，规定怀孕24周后发现“严重的”胎儿迹象时，终止妊娠是合法的。2021年9月23日，高等法院驳回了这一主张。这一行动正值英国国民医疗服务体系21、13和18三体胎儿异常筛查项目引入非侵入性产前检测(NIPT)之际。NIPT的实施受到了严厉批评，尤其是被“不要筛查我们”的活动家批评，因为它增加了对胎儿的选择和对残疾人的歧视。Crowter和Lea-Wilson的案例呼应了法国和德国等其他欧洲国家的辩论，在这些国家，在公共医疗体系中引入NIPT引发了同样激烈的公众反应和讨论。这三个国家之间的比较使围绕NIPT的公共话语和终止怀孕的理由与不同的社会文化和政治背景联系在一起。我们审查了每个国家，特别是英国，如何处理促进残疾人权利和维护妇女生殖自主之间的原则之间的冲突。
On July 2021, the UK High Court of Justice heard the Case CO/2066/2020 on the application of Heidi Crowter who lives with Down’s syndrome, and Máire Lea-Wilson whose son Aidan has Down’s syndrome. Crowter and Lea-Wilson, with the support of the disability rights campaign, ‘Don’t Screen Us Out’, have been taking legal action against the Secretary of State for Health and Social Care (the UK Government) for a review of the 1967 Abortion Act: the removal of section 1(1)(d) making termination of pregnancy lawful for ‘severe’ fetal indications detected after 24 weeks' gestation. On 23 September 2021, the High Court dismissed the claim. This action came at a time when non-invasive prenatal testing (NIPT) was introduced into the NHS England Fetal Anomaly Screening Programme for the trisomies 21, 13 and 18. The implementation of NIPT has been heavily criticised, in particular by ‘Don’t Screen Us Out’ campaigners, for increasing fetal selection and discrimination of people living with disabilities. The case of Crowter and Lea-Wilson echoes debates in other European countries such as in France and Germany, where the introduction of NIPT in the public healthcare system has provoked equally vehement public reactions and discussions. The comparison between these three countries allows contextualising the public discourses around NIPT and the ground for termination of pregnancy in relation to different socio-cultural and political contexts. We examine how each country, and particularly England, deals with the conflict between the principles of promoting the rights of people living with disabilities and preserving women’s reproductive autonomy.
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影响因子：
3
作者：
van Schendel, Rachel V.;Page-Christiaens, G. C. (Lieve);Beulen, Lean;Bilardo, Catia M.;de Boer, Marjon A.;Coumans, Audrey B. C.;Faas, Brigitte H.;van Langen, Irene M.;Lichtenbelt, Klaske D.;van Maarle, Merel C.;Macville, Merryn V. E.;Oepkes, Dick;Pajkrt, Eva;Henneman, Lidewij
通讯作者：
Henneman, Lidewij
影响因子：
3
作者：
Hill M;Barrett A;Choolani M;Lewis C;Fisher J;Chitty LS
通讯作者：
Chitty LS
影响因子：
5.2
作者：
Perrot, Adeline;Horn, Ruth
通讯作者：
Horn, Ruth
影响因子：
8.8
作者：
Costa, Jean-Marc;Letourneau, Alexandra;Benachi, Alexandra
通讯作者：
Benachi, Alexandra
影响因子：
7.1
作者：
Wulff, C. B.;Gerds, T. A.;Tabor, A.
通讯作者：
Tabor, A.