"Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation.
"Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation.
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DOI：
10.1007/s10803-018-3664-0
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发表时间：
2018-12
影响因子：
3.9
通讯作者：
Pellicano E
中科院分区：
文献类型：
--
作者：
Steward R;Crane L;Mairi Roy E;Remington A;Pellicano E
尽管初潮和月经被认为对发育障碍女性来说是极其负面的事件，但自闭症女性的健康问题仍然没有得到充分研究。在这里，我们对一项简短的在线调查的月经初潮后自闭症 (n = 123) 和非自闭症 (n = 114) 受访者的经历进行了初步调查。尽管自闭症受访者报告了许多与非自闭症受访者重叠的问题和经历，但他们也强调了与月经相关的独特且有时令人痛苦的问题，特别是与自闭症相关的挑战的周期性放大，包括感觉差异以及调节情绪和行为的困难，这对他们的生活产生了重大的负面影响。这些初步发现要求对自闭症患者月经相关问题的潜在原因、相关性和后果进行系统研究——涵盖整个谱系和整个生命周期。
Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women’s health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct—and sometimes-distressing—issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals—across the spectrum and the lifespan.
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影响因子：
7.6
作者：
Hamilton, Amy;Marshal, Michael P.;Murray, Pamela J.
通讯作者：
Murray, Pamela J.
影响因子：
1.8
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Burke, Lori M.;Kalpakjian, Claire Z.;Quint, Elisabeth H.
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Quint, Elisabeth H.
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1.6
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Baydi, H.;Puri, B. K.
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Puri, B. K.
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Goldstein, Lisa
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Burrows, A;Johnson, S
通讯作者：
Johnson, S