The PhenX Toolkit: standard measurement resources for cancer outcomes and survivorship research.

The PhenX Toolkit: standard measurement resources for cancer outcomes and survivorship research.
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DOI:
10.1093/jnci/djad010
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发表时间:
2023-04-11
期刊:
Journal of the National Cancer Institute
影响因子:
--
通讯作者:
--
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其他
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这篇简短的报告介绍了PhenX工具包(表型和暴露的共识测量)中的癌症结果和生存域,其中包括15个经过验证的癌症生存研究测量方案,推荐纳入该公开资源。该领域是在科学界的投入下发展起来的,为研究人员提供了完善的测量方案,用于评估身体和心理影响、经济毒性和癌症治疗的患者经历。PhenX工具包是一个在线资源,自2007年以来由国家人类基因组研究所资助,为广泛的研究领域(例如,戒烟,减少危害和生物标志物,以及健康的社会决定因素)提供高质量的标准测量方案。使用PhenX癌症生存结果和生存域可以简化测量方案的选择、数据共享和跨研究癌症生存经验的比较。
This brief report introduces the Cancer Outcomes and Survivorship domain in the PhenX Toolkit (consensus measures for Phenotypes and eXposures), which includes 15 validated measurement protocols for cancer survivorship research that were recommended for inclusion in this publicly available resource. Developed with input from the scientific community, the domain provides researchers with well-established measurement protocols for evaluating physical and psychological effects, financial toxicity, and patient experiences with cancer care. The PhenX Toolkit, funded by the National Human Genome Research Institute since 2007, is an online resource that provides high-quality standard measurement protocols for a wide range of research areas (eg, smoking cessation, harm reduction and biomarkers, and social determinants of health). Use of the PhenX Cancer Survivorship Outcomes and Survivorship domain can simplify the selection of measurement protocols, data sharing, and comparisons across studies investigating the cancer survivorship experience.
识别和描述癌症幸存者:对癌症生存研究和临床护理的影响。
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