Identifying and describing cancer survivors: Implications for cancer survivorship research and clinical care.
Identifying and describing cancer survivors: Implications for cancer survivorship research and clinical care.
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识别和描述癌症幸存者：对癌症生存研究和临床护理的影响。
DOI：
10.1002/cncr.33937
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发表时间：
2022-01-15
期刊：
影响因子：
6.2
通讯作者：
Nekhlyudov L
中科院分区：
文献类型：
--
作者：
Doose M;Mollica MA;Attai DJ;Nasso SF;Elena JW;Jacobsen PB;Tonorezos ES;Nekhlyudov L
直接从癌症幸存者那里收集信息促进了我们对癌症幸存者经验的理解。然而，尚不清楚调查是否可以区分癌症幸存者的重要亚组。本研究旨在描述目前用于识别和描述国家横断面研究中癌症幸存者的调查问题的现状。使用公开的数据库，作者确定了过去15年内在美国使用的国家横断面调查，其中包括关于自我报告癌症史的问题。在提取用于识别癌症幸存者的问题和回答项目后，他们进行了描述性分析。作者确定了14个国家的横断面调查，其中一半针对普通人群，另一半针对癌症幸存者。用于识别癌症幸存者的最常见问题是“您是否曾被医生或其他健康专业人员告知您患有癌症？”大多数调查都有问题，要求参与者识别单一癌症类型（n = 11），多种既往癌症诊断或类型（n = 11）以及诊断时间（n = 12）。治疗问题从积极治疗状态到接受的具体治疗各不相同。涉及癌症分期（n = 2）、亚型（n = 1）、转移状态（n = 3）和复发（n = 4）的问题不太常见。没有标准的方法来评估自我报告的癌症史，这限制了区分潜在重要的幸存者亚组的能力。未来的横断面调查可以捕获细微的数据元素，如癌症类型，阶段/亚型，转移/复发状态和接受的治疗，可以帮助填补癌症生存研究和临床护理的重要空白。在国家横断面研究中没有识别和描述癌症幸存者的标准方法，这限制了区分潜在重要幸存者亚组的能力。未来的横断面调查可以捕获细微的数据元素，如癌症类型，阶段/亚型，转移/复发状态和接受的治疗，可以帮助填补癌症生存研究和临床护理的重要空白。
Gathering information directly from cancer survivors has advanced our understanding of the cancer survivorship experience. However, it is unknown whether surveys can distinguish important subgroups of cancer survivors. This study aimed to describe the current landscape of survey questions used to identify and describe cancer survivors in national cross‐sectional studies. Using publicly available databases, the authors identified national cross‐sectional surveys used in the United States within the past 15 years that included a question on self‐reported history of cancer. After abstracting questions and response items used to identify cancer survivors, they conducted a descriptive analysis. The authors identified 14 national cross‐sectional surveys, with half administered to the general population and the other half administered to cancer survivors. The most common question used to identify cancer survivors was “Have you ever been told by a doctor or other health professional that you had cancer?” Most surveys had questions asking participants to identify a single cancer type (n = 11), multiple prior cancer diagnoses or types (n = 11), and the time from diagnosis (n = 12). Treatment questions varied from active treatment status to specific treatments received. Questions addressing cancer stage (n = 2), subtypes (n = 1), metastatic status (n = 3), and recurrence (n = 4) were less frequently included. There is no standard method for assessing self‐reported cancer history, and this limits the ability to distinguish among potentially important subgroups of survivors. Future cross‐sectional surveys that capture nuanced data elements, such as cancer types, stages/subtypes, metastatic/recurrent status, and treatments received, can help to fill important gaps in cancer survivorship research and clinical care. There is no standard method for identifying and describing cancer survivors in national cross‐sectional studies, and this limits the ability to distinguish among potentially important subgroups of survivors. Future cross‐sectional surveys that capture nuanced data elements, such as cancer types, stages/subtypes, metastatic/recurrent status, and treatments received, can help to fill important gaps in cancer survivorship research and clinical care.
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影响因子：
2.7
作者：
Gast, Kelly C.;Cathcart-Rake, Elizabeth J.;Ruddy, Kathryn J.
通讯作者：
Ruddy, Kathryn J.
DOI：
10.1093/jnci/djaa210
发表时间：
2021-07-01
期刊：
Journal of the National Cancer Institute
影响因子：
--
作者：
Hoopes M;Voss R;Angier H;Marino M;Schmidt T;DeVoe JE;Soule J;Huguet N
通讯作者：
Huguet N
影响因子：
254.7
作者：
DeSantis, Carol E.;Kramer, Joan L.;Jemal, Ahmedin
通讯作者：
Jemal, Ahmedin
影响因子：
3.8
作者：
Ferrante, Jeanne M.;Ohman-Strickland, Pamela;Crabtree, Benjamin F.
通讯作者：
Crabtree, Benjamin F.
影响因子：
3.8
作者：
Islam, Jessica Y.;Camacho-Rivera, Marlene;Vidot, Denise C.
通讯作者：
Vidot, Denise C.