"Nobody Will Tell You. You've Got to Ask!": An Examination of Patient-Provider Communication Needs and Preferences among Black and White Women with Early-Stage Breast Cancer.
"Nobody Will Tell You. You've Got to Ask!": An Examination of Patient-Provider Communication Needs and Preferences among Black and White Women with Early-Stage Breast Cancer.
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DOI：
10.1080/10410236.2020.1751383
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发表时间：
2021-10
影响因子：
3.9
通讯作者：
Graetz I
中科院分区：
文献类型：
--
作者：
Anderson JN;Graff JC;Krukowski RA;Schwartzberg L;Vidal GA;Waters TM;Paladino AJ;Jones TN;Blue R;Kocak M;Graetz I
患者与提供者的沟通是医疗保健的关键组成部分，与乳腺癌女性的治疗质量和结果有关。这项定性研究考察了黑人和白人乳腺癌幸存者之间患者对沟通需求的看法的异同。我们对早期乳腺癌妇女进行了四个焦点小组(N=28)的辅助内分泌治疗(AET)，按种族和接受AET的时间长短分层(分别为6个月和6个月)。每组由一名种族协调的主持人主持，并按紧急主题进行分析。与会者表达了共同的患者-提供者沟通需求，即肿瘤医生在癌症初始诊断期间提高了敏感度，个性化信息有助于治疗决策，从积极治疗过渡到维持期间的情感支持，以及提供者对基于移动应用程序的查询的快速响应。不同种族之间的交流差异也出现了。黑人女性比白人女性更不可能描述她们的信息需求得到满足。白人女性赞扬了与提供者的长期关系，而黑人女性分享了失去权力的互动的个人故事，并指出了患者权益倡导者的重要性。白人女性更多地报告了对技术使用的隐私问题。与白人女性不同，黑人女性报告愿意在线上和线下讨论敏感话题，但认为这些讨论让她们的提供者感到不舒服。接受AET治疗的早期乳腺癌患者，无论种族，都有类似的需求，需要以患者为中心与他们的肿瘤学家进行沟通。然而，黑人女性更有可能报告与供应商的沟通比白人女性更差，这可能会被技术和倡导者改善。
Patient-provider communication is a critical component of healthcare and is associated with treatment quality and outcomes for women with breast cancer. This qualitative study examines similarities and differences in patient perspectives of communication needs between Black and White breast cancer survivors. We conducted four focus groups (N=28) involving women with early-stage breast cancer on adjuvant endocrine therapy (AET), stratified by race and length of time on AET (< 6 months and >6 months). Each group was moderated by a race-concordant moderator and analyzed by emergent themes. Participants expressed common patient-provider communication needs, namely increased sensitivity from oncologists during the initial cancer diagnosis, personalized information to facilitate treatment decisions, emotional support during the transition from active treatment to maintenance, and rapid provider responses to mobile app-based queries. Communication differences by race also emerged. Black women were less likely than White women to describe having their informational needs met. White women praised longstanding relationships with providers, while Black women shared personal stories of disempowered interactions and noted the importance of patient advocates. White women more often reported privacy concerns about technology use. Unlike White women, Black women reported willingness to discuss sensitive topics, both online and offline, but believed those discussions made their providers feel uncomfortable. Early-stage breast cancer patients on AET, regardless of race, have similar needs for patient-centered communication with their oncologists. However, Black women were more likely to report experiencing poorer communication with providers than White women, which may be improved by technology and advocates.
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影响因子：
254.7
作者：
DeSantis, Carol E.;Fedewa, Stacey A.;Jemal, Ahmedin
通讯作者：
Jemal, Ahmedin
影响因子：
45.3
作者：
Henry, N. Lynn;Azzouz, Faouzi;Storniolo, Anna Maria
通讯作者：
Storniolo, Anna Maria
影响因子：
3.5
作者：
Bakker, DA;Fitch, MI;Bennett, J
通讯作者：
Bennett, J
影响因子：
45.3
作者：
Bickell, NA;Wang, JJ;Guth, AA
通讯作者：
Guth, AA
影响因子：
2.3
作者：
Girgis, A;Sanson-Fisher, RW;Schofield, MJ
通讯作者：
Schofield, MJ