'Reluctant pioneer': A qualitative study of doctors' experiences as patients with long COVID.

'Reluctant pioneer': A qualitative study of doctors' experiences as patients with long COVID.
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“不情愿的先驱”:对医生长期相互交往的医生经历的定性研究。

DOI:
10.1111/hex.13223
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发表时间:
2021-06
期刊:
Health expectations : an international journal of public participation in health care and health policy
影响因子:
--
通讯作者:
Chew-Graham CA
Chew-Graham CA
中科院分区:
其他
文献类型:
--
作者:
Taylor AK;Kingstone T;Briggs TA;O'Donnell CA;Atherton H;Blane DN;Chew-Graham CA

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冠状病毒病(新冠肺炎)大流行对生命、医疗保健系统和社会产生了深远影响。一些表面上感染新冠肺炎的患者仍有持续性症状,包括胸痛、呼吸急促、乏力、认知障碍、感觉过敏、肌肉和关节痛。这被贴上了“长冠状病毒”的标签。本文报告了长冠状病毒感染医生的经验。定性研究;通过电话或视频电话对出现持续症状的医生进行采访。访谈被记录下来,并采用归纳和主题的方法进行分析。13名医生参与其中。报告的主题如下:了解症状,感到失望,利用医学知识和关系,想要帮助和被帮助,将患者和专业身份结合起来。经历漫长的COVID可能会带来变革:许多人表示希望他们的经历会带来好处。痛苦与“失望”的感觉有关,也与试图获得护理的艰苦工作有关。参与者强调,他们觉得能够更好地照顾和同情慢性病患者,特别是那些症状无法解释的患者。这项研究增加了关于医生作为患者的经历的文献,特别是在证据不断涌现、患者必须带头寻找解决问题的方法和获得自己的护理的情况下。这项研究是与Experience的专家(包括合著者HA和TAB)共同开发的,他们对协议和伦理的应用做出了贡献,并就分析和影响发表了评论。所有参与者都有机会对调查结果发表评论。
The coronavirus disease (COVID‐19) pandemic has had far‐reaching effects upon lives, healthcare systems and society. Some who had an apparently 'mild' COVID‐19 infection continue to suffer from persistent symptoms, including chest pain, breathlessness, fatigue, cognitive impairment, paraesthesia, muscle and joint pains. This has been labelled 'long COVID'. This paper reports the experiences of doctors with long COVID. A qualitative study; interviews with doctors experiencing persistent symptoms were conducted by telephone or video call. Interviews were transcribed and analysis conducted using an inductive and thematic approach. Thirteen doctors participated. The following themes are reported: making sense of symptoms, feeling let down, using medical knowledge and connections, wanting to help and be helped, combining patient and professional identity. Experiencing long COVID can be transformative: many expressed hope that good would come of their experiences. Distress related to feelings of being ‘let down’ and the hard work of trying to access care. Participants highlighted that they felt better able to care for, and empathize with, patients with chronic conditions, particularly where symptoms are unexplained. The study adds to the literature on the experiences of doctors as patients, in particular where evidence is emerging and the patient has to take the lead in finding solutions to their problems and accessing their own care. The study was developed with experts by experience (including co‐authors HA and TAB) who contributed to the protocol and ethics application, and commented on analysis and implications. All participants were given the opportunity to comment on findings.
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