Cancer Survivors' Disability Experiences and Identities: A Qualitative Exploration to Advance Cancer Equity.
Cancer Survivors' Disability Experiences and Identities: A Qualitative Exploration to Advance Cancer Equity.
复制标题
癌症幸存者的残疾经历和身份：促进癌症公平的定性探索。
DOI：
10.3390/ijerph19053112
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发表时间：
2022-03-06
影响因子：
--
通讯作者：
Victorson D
中科院分区：
文献类型：
--
作者：
Magasi S;Marshall HK;Winters C;Victorson D
消除与癌症相关的差距是全球公共卫生的优先事项。大约40%的癌症幸存者经历癌症的长期影响，这可能导致活动限制和参与限制;然而，临床和研究癌症健康公平议程中基本上没有关于残疾的讨论。这项研究的目的是探索癌症幸存者如何体验和理解癌症及其治疗的长期致残影响。在这项定性研究中，数据收集通过深入的半结构化访谈与乳腺癌，头颈癌和肉瘤（n = 30）的幸存者。使用从描述到概念编码的2阶段迭代过程对数据进行主题分析。幸存者经历了广泛的长期的身体，感官，认知和情感的影响，交织在一起，限制他们参与自我照顾，工作，休闲和社会角色。虽然障碍和参与限制之间的相互作用符合残疾的定义;当被问及他们的残疾身份时，参与者表达了一系列的反应，包括（1）拒绝，（2）他者，（3）承认，和（4）肯定。研究结果可能表明结构和内在的能力，这可能会阻碍癌症护理和生存。为了支持癌症幸存者过渡到治疗后的生活，癌症护理提供者应该实施反能力者的做法，并就癌症的长期影响进行坦率的讨论。
Eliminating cancer-related disparities is a global public health priority. Approximately 40% of cancer survivors experience long-term effects of cancer which can lead to activity limitations and participation restrictions; yet discussions of disability are largely absent from clinical and research cancer health equity agendas. The purpose of this study was to explore how cancer survivors experience and make sense of the long-term disabling effects of cancer and its treatments. In this qualitative study, data were collected via in-depth semi-structured interviews with survivors of breast cancer, head and neck cancer, and sarcoma (n = 30). Data were analyzed thematically using a 2-phase iterative process proceeding from descriptive to conceptual coding. Survivors experienced a wide range of long-term physical, sensory, cognitive, and emotional effects, that intertwined to restrict their participation in self-care, work, leisure, and social roles. While the interaction between impairments and participation restrictions meets the definition of disability; participants articulated a range of responses when asked about their disability identity, including (1) rejecting, (2) othering, (3) acknowledging, and (4) affirming. Findings may be indicative of structural and internalized ableism which can impede cancer care and survivorship. To support cancer survivors’ transition to post-treatment life, cancer care providers should implement anti-ableist practices and engage in frank discussions about cancer’s long-term impacts.
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DOI：
10.1016/s0003-9993(99)90161-2
发表时间：
1999-06-01
影响因子：
4.3
作者：
Davis, AM;Devlin, M;Bell, RS
通讯作者：
Bell, RS
DOI：
10.1097/phm.0000000000001622
发表时间：
2021-02-01
影响因子：
3
作者：
Agaronnik ND;El-Jawahri A;Kirschner K;Iezzoni LI
通讯作者：
Iezzoni LI
DOI：
10.14694/edbk_156164
发表时间：
2016-01-01
期刊：
American Society of Clinical Oncology educational book. American Society of Clinical Oncology. Annual Meeting
影响因子：
--
作者：
Alfano, Catherine M;Cheville, Andrea L;Mustian, Karen
通讯作者：
Mustian, Karen
影响因子：
3.2
作者：
Creswell, JW;Miller, DL
通讯作者：
Miller, DL
影响因子：
2.7
作者：
Bogart, Kathleen R.;Rottenstein, Adena;Bouchard, Lauren
通讯作者：
Bouchard, Lauren