Diabetes and Cancer Co-management Education: Leveraging the Patient Activated Learning System (PALS) for Patients with Breast Cancer.

Diabetes and Cancer Co-management Education: Leveraging the Patient Activated Learning System (PALS) for Patients with Breast Cancer.
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DOI:
10.1007/s13187-023-02298-5
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发表时间:
2023-10
影响因子:
1.6
通讯作者:
Pinheiro, Laura C. C.
Pinheiro, Laura C. C.
中科院分区:
医学4区
文献类型:
--
作者:
Rothman, Julia;Roudik, Michael;Zeng, Caroline;Ssebyala, Shakirah;Pinheiro, Laura C. C.

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超过70%的癌症患者有一种或多种合并症,糖尿病是最常见和负担最重的合并症之一。然而,现有的以患者为中心的教育材料往往没有承认如何共同管理癌症和糖尿病,让患者感到不知所措,并寻求指导。我们的团队试图通过使用患者激活学习系统(帕尔斯)(一个以患者为中心的公开平台)来填补这一知识空白,以生成以患者为中心的关于共同管理糖尿病和癌症的教育材料。利用15名患者访谈记录的见解,我们针对患者关于共同管理糖尿病和癌症的各种常见问题开发了8个可重用知识对象(RKO)。RKO是与研究人员和临床医生合作编写的,然后由专家进行同行评审。八个循证RKO有可能为患者提供支持癌症和糖尿病共同管理的知识。目前还没有以患者为中心的教育资源来帮助患者在癌症治疗期间管理他们的糖尿病。我们通过使用患者激活学习系统(帕尔斯)来填补这一空白,以生成基于证据的、面向患者的教育信息,这些信息由研究人员和临床医生撰写,并由专家进行同行评审。该教育内容将支持患者的癌症和糖尿病共同管理。
More than 70% of cancer patients have one or more comorbid conditions, and diabetes is one of the most common and burdensome comorbidities. However, existing patient-centered education materials often fail to acknowledge how to co-manage cancer and diabetes, leaving patients feeling overwhelmed and searching for guidance. Our team sought to fill this knowledge gap by using the Patient Activated Learning System (PALS), a patient-centered, publicly available platform, to generate patient-centered education materials about co-managing diabetes and cancer. Using insights from 15 patient interview transcripts, we developed eight reusable knowledge objects (RKOs) for a variety of common questions that patients have about co-managing diabetes and cancer. The RKOs were written in collaboration with researchers and clinicians and then peer reviewed by experts. The eight evidence-based RKOs have the potential to equip patients with the knowledge to support cancer and diabetes co-management. There are no existing patient-centered educational resources to help patients manage their diabetes during cancer treatments. We filled this gap by using the Patient Activated Learning System (PALS) to generate evidence-based, patient-facing educational information that was written by researchers and clinicians and peer reviewed by experts. This educational content will support cancer and diabetes co-management for patients.
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