Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.
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DOI:
10.1007/s11136-021-02814-4
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发表时间:
2021-07
期刊:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
影响因子:
--
通讯作者:
Harding R
Harding R
中科院分区:
其他
文献类型:
--
作者:
Coombes L;Bristowe K;Ellis-Smith C;Aworinde J;Fraser LK;Downing J;Bluebond-Langner M;Chambers L;Murtagh FEM;Harding R

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自我报告是衡量儿童健康相关结果的金标准。这些措施的设计是复杂和具有挑战性的。本综述旨在系统地评估有关回忆期、反应量表格式、管理模式和方法的证据,以使19岁以下的儿童和青少年能够参与有效和可靠的健康结果自我报告。检索了1990年1月1日至2020年3月15日期间的PsycInfo、Medline、CINAHL和Embase,并在Scopus中进行了引文检索。如果文章是主要研究或≥ 3例受试者的病例报告,报告以下内容:回忆期、应答量表选择、给药方式,则纳入文章。质量进行了评估,使用QualSyst和结果合成naradically。该审查根据PRISMA指南进行并报告。检索到的13,215篇文章中有81篇符合纳入标准。5岁以下的儿童不能有效和可靠地自我报告健康结果。面部量表表现出更好的心理测量性能比视觉模拟或李克特量表。计算机和纸质量表通常显示出等同的结构效度。孩子们更喜欢电脑化的测量。7岁以下的儿童思维二分法,因此需要两种反应选项。那些> 8岁的孩子可以可靠地使用3点量表。本综述的结果具有临床和研究意义。它们可用于告知在临床环境中与胎膜早破一起使用的适当选择。我们还为儿童和青少年自我报告结果措施的未来发展提出了八项建议。在线版本包含补充材料,可通过10.1007/s11136-021-02814-4获得。
Self-report is the gold standard for measuring children’s health-related outcomes. Design of such measures is complex and challenging. This review aims to systematically appraise the evidence on recall period, response scale format, mode of administration and approaches needed to enable children and young people < 19 years to participate in valid and reliable self-reporting of their health outcomes. PsycInfo, Medline, CINAHL and Embase were searched from 1 January 1990 to 15 March 2020, and citation searching undertaken in Scopus. Articles were included if they were primary research or case reports of ≥ 3 participants reporting the following: recall period, response scale selection, administration modality. Quality was assessed using QualSyst, and results synthesised narratively. This review was conducted and reported according to PRISMA guidelines. 81 of 13,215 retrieved articles met the inclusion criteria. Children < 5 years old cannot validly and reliably self-report health outcomes. Face scales demonstrate better psychometric properties than visual analogue or Likert scales. Computerised and paper scales generally show equivalent construct validity. Children prefer computerised measures. Children ≤ 7 years old think dichotomously so need two response options. Those > 8 years old can reliably use a 3-point scale. The results of this review have both clinical and research implications. They can be used to inform appropriate choice of PROM for use with CYP in the clinical setting. We also give eight recommendations for future development of self-reported outcome measures for children and young people. The online version contains supplementary material available at 10.1007/s11136-021-02814-4.
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