How well do family caregivers know their relatives' care values and preferences?

How well do family caregivers know their relatives' care values and preferences?
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家庭护理人员对亲属的护理价值观和偏好了解多少?

DOI:
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发表时间:
2009
期刊:
影响因子:
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通讯作者:
Lynn Friss Feinberg
Lynn Friss Feinberg
中科院分区:
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文献类型:
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作者:
C. Whitlatch;R. Piiparinen;Lynn Friss Feinberg

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目的:本研究考察了价值观与偏好量表(VPS)的心理测量特征,并将267名认知障碍患者与其家庭照顾者的反应进行比较,以确定照顾者对其亲属的照顾价值观和偏好感知的准确性。设计与方法:探索性因素分析探讨了认知障碍患者(pwci)和家庭照顾者的VPS是否存在一致的因素结构。分析还确定了家庭照顾者对其亲属的护理偏好的看法是否准确。结果:结果表明,将VPS分为四个因素或子量表(即负担、护理安全/质量、自主性和社会互动)是最好的,所有这些因素和子量表对认知障碍患者和家庭照顾者具有足够的内部一致性。照顾者通常很清楚什么偏好对他们的亲属最重要(即,安全和护理质量的问题),但往往低估了某些价值观和偏好的重要性。启示:这些发现支持了先前的工作,即从业人员在与认知障碍患者及其家庭照顾者一起工作时考虑纳入日常护理的价值观和偏好评估。价值观和偏好量表的进一步应用和测试应该证明对帮助认知障碍者及其照顾者进行卫生保健决策和规划的从业人员有用。
Purpose: This study examines the psychometric properties of the Values and Preferences Scale (VPS) and compares the responses of 267 persons with cognitive impairment with the responses of their family caregivers to determine the accuracy of the caregivers' perceptions of their relatives' care values and preferences. Design and Methods: Exploratory factor analyses examined whether a consistent factor structure could be found for the VPS for both persons with cognitive impairment (PWCIs) and family caregivers. Analyses also determined whether family caregivers were accurate in their perceptions of their relative's care preferences. Results: Results indicated that the VPS was best divided into four factors or subscales (i.e., Burden, Safety/Quality of Care, Autonomy, and Social Interactions) all of which were found to have adequate internal consistency for persons with cognitive impairment and family caregivers. Caregivers generally had a good sense of what preferences were most important to their relatives (i.e., issues of safety and quality of care), but often underestimated the importance of certain values and preferences. Implications: These findings support previous work suggesting that practitioners consider incorporating an assessment of values and preferences for everyday care when working with persons with cognitive impairment and their family caregivers. Further application and testing of the Values and Preferences Scale should prove useful to practitioners who assist cognitively impaired persons and their caregivers with health care decision making and planning.
DOI: 10.1093/geronj/44.3.p61
发表时间: 1989-05-01
期刊: JOURNALS OF GERONTOLOGY
影响因子: --
作者:
LAWTON, MP;KLEBAN, MH;GLICKSMAN, A
通讯作者: GLICKSMAN, A
DOI: 10.1093/geront/30.5.583
发表时间: 1990-10-01
期刊: GERONTOLOGIST
影响因子: 5.7
作者:
PEARLIN, LI;MULLAN, JT;SKAFF, MM
通讯作者: SKAFF, MM
在长期护理决策中映射个人、家庭和专业价值观。
DOI: 10.1093/geront/33.3.324
发表时间: 1993
期刊: The Gerontologist
影响因子: --
作者:
McCullough,LB;Wilson,NL;Teasdale,TA;Kolpakchi,AL;Skelly,JR
通讯作者: Skelly,JR