Learning to live with irritabel bowel syndrome. The influence of a group-based patient education programme on peoples' ability to manage illness in everyday life.
Learning to live with irritabel bowel syndrome. The influence of a group-based patient education programme on peoples' ability to manage illness in everyday life.
复制标题
学习忍受肠易激综合症。
DOI：
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发表时间：
2011
影响因子：
1.9
通讯作者：
H. Nyhlin
中科院分区：
文献类型：
--
作者：
C. Håkanson;E. Sahlberg‐Blom;B. Ternestedt;H. Nyhlin
背景
患有慢性肠易激综合症，给人们的日常生活带来了限制。这是由于健康状况不佳以及难以找到解决问题的策略。在与医疗保健提供者接触时，这些人感到他们没有得到适当的支持来处理与疾病相关的问题，并且他们认为自己对这种疾病了解不够。
目的
评估关于肠易激综合症的基于团体的患者教育计划对人们在日常生活中控制疾病的能力的影响。
方法
该研究采用了评价性研究设计。 51 名肠易激综合征患者在参加多学科小组患者教育计划之前和之后完成了应对方式问卷和肠易激综合征严重程度评分系统。
结果
在参与者的自我评估中，发现疏远和逃避的应对策略所使用的平均频率具有统计显着性（p > 0.05）。教育计划结束后，疏远措施的使用频率更高，而逃避措施则很少使用。教育计划结束后，自我控制策略（相对分数）的比例使用得到了提高。教育计划结束后，参与者症状的总体严重程度显着减轻。与症状严重程度改善较小的个体相比，症状严重程度有临床显着改善（降低≤ 50）的个体的相对评分值变化更大。
结论
参加教育计划的参与者的应对模式发生了变化，症状的严重程度明显减轻。建议进行较长时期内跟踪个人的对照研究，以确定这些变化的有效性和可持续性，定性访谈研究将提供对教育计划各个部分的重要性以及该计划对人们整体日常生活的意义的更多理解。
BACKGROUND
Living with chronic irritable bowel syndrome sets limitations in peoples' everyday lives. This is due to bad health and the difficulty to find strategies that will manage their problem. In encounters with health care providers, these people feel that they are not getting the appropriate support to manage their illness-related troubles, and they perceive themselves to be insufficiently informed about the disease.
AIM
To evaluate the influence of a group-based patient education programme about irritable bowel syndrome, on people's ability to manage their illness in everyday life.
METHODS
The study used an evaluative research design. Fifty-one individuals with irritable bowel syndrome completed the ways of coping questionnaire, and the irritable bowel syndrome severity scoring system, before and after participating in a multidisciplinary group-based patient education programme.
RESULTS
In the participants' self assessments, statistical significances (p > 0.05) were found for the mean frequency of efforts used on the coping strategies distancing and escape-avoidance. Distancing was used more often after the education programme, while escape-avoidance, was used more seldom. The proportional use of the strategy self-controlling (relative score) was enhanced after the education programme. The participants' overall severity of symptoms was significantly reduced after the education programme. The individuals with a clinically noteworthy improvement in symptom severity (decrease ≤ 50) had greater changes in relative score values than those that showed a lesser improvement in symptom severity.
CONCLUSION
Coping patterns were changed and symptoms were scored significantly less severe among the participants who participated in the education programme. Controlled studies following individuals over a longer period are suggested to establish the validity and sustainability of these changes, and qualitative interview studies would provide additional understanding about the significance of the separate parts of the education programme, and about the meaning of the programme to peoples' everyday lives as a whole.
影响因子：
3.5
作者：
Anderson RM;Funnell MM
通讯作者：
Funnell MM