Consumer Willingness to Share Personal Digital Information for Health-Related Uses.
Consumer Willingness to Share Personal Digital Information for Health-Related Uses.
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DOI：
10.1001/jamanetworkopen.2021.44787
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发表时间：
2022-01-04
影响因子：
13.8
通讯作者：
Cannuscio CC
中科院分区：
文献类型：
--
作者：
Grande D;Mitra N;Iyengar R;Merchant RM;Asch DA;Sharma M;Cannuscio CC
哪些因素与消费者愿意分享他们的数字信息用于健康相关用途有关？在这项针对3543名美国成年人的调查研究中，消费者分享数字数据的意愿与一系列因素有关，最重要的是数据的来源和类型。某些数据（例如，金融，社交媒体，公共摄像头）被认为比电子健康记录数据更敏感，但对数字健康隐私的潜在看法与消费者对共享任何数字信息的看法密切相关。在这项研究中，许多消费者不愿意分享他们的数字数据用于与健康相关的用途，这表明可能需要新的隐私保护来增加消费者的信任。这项调查研究评估了与消费者愿意分享他们的数字健康信息用于研究，医疗保健和商业用途相关的因素。消费者通常会生成反映其健康状况的数字信息。评估与消费者愿意分享其数字健康信息用于研究、医疗保健和商业用途相关的因素。这项带有嵌入式联合实验的全国调查从全国代表性样本中招募了美国成年人，并对黑人和西班牙裔小组成员进行了过度抽样。参与者被随机分配到15个场景中，这些场景反映了来自324个场景的消费者数字信息的用例。联合分析的属性包括3种用途、3种用户、9种数字信息来源和4种相关健康状况。调查于2020年7月10日至31日进行。参与者在5分制的李克特量表（1-5分）上对每个联合档案进行评分，以衡量他们分享个人数字信息的意愿（5分表示最愿意分享）。结果反映了多变量回归模型中该量表的平均差异。在6284名潜在参与者中，3543人（56%）做出了回应。共有1862名参与者（53%）为女性，759名（21%）为黑人，834名（24%）为西班牙裔，1274名（36%）为60岁或以上。与来自电子医疗记录的信息相比，参与者不太愿意分享他们的财务信息（系数，-0.56; 95%CI，-0.62至-0.50），他们从公共摄像机访问的地方（系数，−0.28; 95%CI，−0.33至−0.22），社交媒体上的沟通（系数，-0.20; 95%CI，-0.26至-0.15），以及他们从互联网搜索引擎的搜索历史（系数，-0.11; 95%CI，-0.17至-0.06）。他们更愿意从手机上的应用程序中分享他们的步骤信息（系数，0.22; 95% CI，0.17-0.28）。在联合属性中，信息来源（重要性权重：59.1%）比用户（17.3%），使用（12.3%）和健康状况（11.3%）更重要。四群消费者从样本中出现了不同的隐私观点。虽然使用环境很重要，但这4组人在分享的总体意愿上存在差异，337名参与者被归类为从不分享; 1116名被归类为反对分享（平均评分，1.64; 95% CI，1.62-1.65）; 1616例被归类为不确定是否共享（平均评分，2.84; 95%CI，2.81-2.86）;和474分类为同意分享（平均评分，4.18; 95%CI，4.16-4.21）。那些被认为是白色和非西班牙裔，收入较高，政治上保守的受访者更有可能处于不太愿意分享的群体中（即从不或厌恶群体）。这些发现表明，尽管消费者出于健康目的分享个人数字信息的意愿与使用环境有关，但许多人有强烈的潜在隐私观点，这会影响他们的分享意愿。可能需要新的保护措施，让消费者有信心放心地分享他们的个人信息。
What factors are associated with consumers’ willingness to share their digital information for health-related uses? In this survey study of 3543 US adults, consumer willingness to share digital data was associated with a range of factors, most importantly the source and type of data. Certain data (eg, financial, social media, public cameras) were viewed as more sensitive than electronic health record data, but underlying views on digital health privacy were strongly associated with consumer views on sharing any digital information. In this study, many consumers were reluctant to share their digital data for health-related uses, suggesting that new privacy protections may be needed to increase consumer trust. This survey study evaluates the factors associated with consumers’ willingness to share their digital health information for research, health care, and commercial uses. Consumers routinely generate digital information that reflects on their health. To evaluate the factors associated with consumers’ willingness to share their digital health information for research, health care, and commercial uses. This national survey with an embedded conjoint experiment recruited US adults from a nationally representative sample, with oversampling of Black and Hispanic panel members. Participants were randomized to 15 scenarios reflecting use cases for consumer digital information from a total of 324 scenarios. Attributes of the conjoint analysis included 3 uses, 3 users, 9 sources of digital information, and 4 relevant health conditions. The survey was conducted from July 10 to 31, 2020. Participants rated each conjoint profile on a 5-point Likert scale (1-5) measuring their willingness to share their personal digital information (with 5 indicating the most willingness to share). Results reflect mean differences in this scale from a multivariable regression model. Among 6284 potential participants, 3543 (56%) responded. A total of 1862 participants (53%) were female, 759 (21%) identified as Black, 834 (24%) identified as Hispanic, and 1274 (36%) were 60 years or older. In comparison with information from electronic health care records, participants were less willing to share information about their finances (coefficient, −0.56; 95% CI, −0.62 to −0.50), places they visit from public cameras (coefficient, −0.28; 95% CI, −0.33 to −0.22), communication on social media (coefficient, −0.20; 95% CI −0.26 to −0.15), and their search history from internet search engines (coefficient, −0.11; 95% CI, −0.17 to −0.06). They were more willing to share information about their steps from applications on their phone (coefficient, 0.22; 95% CI, 0.17-0.28). Among the conjoint attributes, the source of information (importance weight: 59.1%) was more important than the user (17.3%), use (12.3%), and health condition (11.3%). Four clusters of consumers emerged from the sample with divergent privacy views. While the context of use was important, these 4 groups expressed differences in their overall willingness to share, with 337 participants classified as never share; 1116 classified as averse to sharing (mean rating, 1.64; 95% CI, 1.62-1.65); 1616 classified as uncertain about sharing (mean rating, 2.84; 95% CI, 2.81-2.86); and 474 classified as agreeable to sharing (mean rating, 4.18; 95% CI, 4.16-4.21). Respondents who identified as White and non-Hispanic, had higher income, and were politically conservative were more likely to be in a cluster that was less willing to share (ie, never or averse clusters). These findings suggest that although consumers’ willingness to share personal digital information for health purposes is associated with the context of use, many have strong underlying privacy views that affect their willingness to share. New protections may be needed to give consumers confidence to be comfortable sharing their personal information.
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影响因子：
39
作者：
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通讯作者：
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影响因子：
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通讯作者：
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