Consumer Views on Health Applications of Consumer Digital Data and Health Privacy Among US Adults: Qualitative Interview Study.
Consumer Views on Health Applications of Consumer Digital Data and Health Privacy Among US Adults: Qualitative Interview Study.
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DOI：
10.2196/29395
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发表时间：
2021-06-09
影响因子：
7.4
通讯作者：
Cannuscio CC
中科院分区：
文献类型：
--
作者：
Grande D;Luna Marti X;Merchant RM;Asch DA;Dolan A;Sharma M;Cannuscio CC
2020年，网民数量超过46亿。创建和共享数字数据的个人可以留下一系列关于他们的习惯和偏好的信息，这些信息共同产生了数字足迹。研究表明，数字足迹可以揭示一个人的健康状况的重要信息，从饮食、锻炼到抑郁。在新冠肺炎大流行期间，数字应用的使用加快了，公共卫生组织利用技术来减轻传播负担，最终导致了关于数字健康隐私的政策讨论。尽管美国消费者报告对他们的个人数据被使用的方式感到担忧，但他们继续使用数字技术。这项研究旨在了解消费者在多大程度上认识到他们的数字数据可能的健康应用，并确定他们对数字健康隐私最突出的担忧。从2018年11月到2019年1月，我们对不同国家的美国成年人进行了半结构化采访。参与者是从Ipsos KnowledgePanel招募的，这是一个具有全国代表性的小组。参与者被要求反思他们自己对数字技术的使用，对各种数字信息来源进行评级，并考虑几种假设情景，这些情景具有不同的来源和与健康有关的个人数字信息应用。最终的队列包括来自不同国家的45名美国消费者。参与者通常不知道消费者数字数据可能会揭示他们的健康状况。他们还揭示了对当前数据收集和汇总做法的有限了解。在应对与健康相关的数据应用的特定场景时，他们很难权衡利弊，但表达了保护隐私的愿望。他们看到了使用数字数据改善健康的好处，但希望限制健康计划使用消费者数字数据。目前对健康相关数据的隐私限制是以这些数据仅来自医疗接触的概念为前提的。鉴于越来越多的健康相关数据来自消费者环境中的数字足迹，我们的发现表明，需要提高数据收集和使用的透明度，以及更广泛的健康隐私保护。
In 2020, the number of internet users surpassed 4.6 billion. Individuals who create and share digital data can leave a trail of information about their habits and preferences that collectively generate a digital footprint. Studies have shown that digital footprints can reveal important information regarding an individual’s health status, ranging from diet and exercise to depression. Uses of digital applications have accelerated during the COVID-19 pandemic where public health organizations have utilized technology to reduce the burden of transmission, ultimately leading to policy discussions about digital health privacy. Though US consumers report feeling concerned about the way their personal data is used, they continue to use digital technologies. This study aimed to understand the extent to which consumers recognize possible health applications of their digital data and identify their most salient concerns around digital health privacy. We conducted semistructured interviews with a diverse national sample of US adults from November 2018 to January 2019. Participants were recruited from the Ipsos KnowledgePanel, a nationally representative panel. Participants were asked to reflect on their own use of digital technology, rate various sources of digital information, and consider several hypothetical scenarios with varying sources and health-related applications of personal digital information. The final cohort included a diverse national sample of 45 US consumers. Participants were generally unaware what consumer digital data might reveal about their health. They also revealed limited knowledge of current data collection and aggregation practices. When responding to specific scenarios with health-related applications of data, they had difficulty weighing the benefits and harms but expressed a desire for privacy protection. They saw benefits in using digital data to improve health, but wanted limits to health programs’ use of consumer digital data. Current privacy restrictions on health-related data are premised on the notion that these data are derived only from medical encounters. Given that an increasing amount of health-related data is derived from digital footprints in consumer settings, our findings suggest the need for greater transparency of data collection and uses, and broader health privacy protections.
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影响因子：
13.8
作者：
Grande, David;Marti, Xochitl Luna;Cannuscio, Carolyn C.
通讯作者：
Cannuscio, Carolyn C.
影响因子：
6.4
作者：
Conger, Sue;Pratt, Joanne H.;Loch, Karen D.
通讯作者：
Loch, Karen D.
影响因子：
7.4
作者：
McIver DJ;Hawkins JB;Chunara R;Chatterjee AK;Bhandari A;Fitzgerald TP;Jain SH;Brownstein JS
通讯作者：
Brownstein JS
DOI：
10.1073/pnas.1802331115
发表时间：
2018-10-30
影响因子：
11.1
作者：
Eichstaedt JC;Smith RJ;Merchant RM;Ungar LH;Crutchley P;Preoţiuc-Pietro D;Asch DA;Schwartz HA
通讯作者：
Schwartz HA