A Community of Practice to increase education and collaboration in dementia and ageing research and care: The Liverpool Dementia & Ageing Research Forum.
A Community of Practice to increase education and collaboration in dementia and ageing research and care: The Liverpool Dementia & Ageing Research Forum.
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DOI：
10.1111/hex.13806
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发表时间：
2023-10
影响因子：
3.2
通讯作者：
Eley, Ruth
中科院分区：
文献类型：
--
作者：
Giebel, Clarissa;Tetlow, Hilary;Faulkner, Thomas;Eley, Ruth
通常，痴呆症研究是在研究孤岛中进行的，没有彻底整合有实际经验的人、护理专业人员和第三部门的参与。研究也可能迷失在学术出版物中，而无法触及那些从证据中获益最多的人。本方法和评估文件的目的是概述面向公众和参与的利物浦痴呆症与老龄化研究论坛的目标、组成部分和评估，为建立类似的实践社区提供蓝图。该论坛成立于2019年，旨在(a)将痴呆症和老龄化领域的不同利益攸关方联系起来，共同开展研究；(b)提供信息和教育。本文对论坛模式进行了描述，并对以下关键要素进行了评估：(1)参与度；(2)论坛的经验及其影响（通过在线评价调查和三次反思）。所有论坛成员和与会者都被要求完成一份关于他们在2022年10月至11月期间的经历的简短评估调查。三位定期参加论坛的人提供了一个关于他们的参与及其影响的案例研究。论坛自发起以来，已接触到不同利益攸关方和公众，引起了越来越多的兴趣和参与。44名成员和与会者完成了调查。完成评估调查的大多数与会者迄今为止参与了5至20项活动（47.8%），91%的与会者认为论坛的目标已经实现。参与论坛为与会者带来了各种好处，包括提高研究能力和知识，以及改善与其他利益攸关方的联系。11%的受访者和39%的在世专家表示，他们获得诊断后护理的机会有所改善。这是首次报道的关于痴呆症和老龄化的多利益攸关方实践社区。我们就建立和运行类似的痴呆症缔约方会议提出了重要建议，因为它们为提高认识、能力和获得痴呆症护理提供了一种非干预性形式。本文报告了痴呆症患者、无薪护理人员、卫生和社会护理提供者以及第三部门组织参与缔约方会议的情况。
Too often, dementia research is conducted in research silos without thorough integration and the involvement of people with lived experiences, care professionals and the Third Sector. Research can also get lost in academic publications, without reaching those benefiting most from the evidence. The aim of this methods and evaluation paper was to outline the aims, components and evaluation of the public‐facing and ‐engaging Liverpool Dementia & Ageing Research Forum, to provide a blueprint for setting up similar communities of practice. The Forum was set up in 2019 with the aim to (a) connect different stakeholders in dementia and ageing and co‐produce research and to (b) inform and educate. This paper provides an account of the Forum model and evaluates the following key elements: (1) engagement; (2) experiences of the Forum and its impact (via an online evaluation survey and three reflections). All Forum members and attendees were asked to complete a brief evaluation survey about their experiences from October to November 2022. Three regular Forum attendees provided a case study about their involvement and its impact. The Forum has reached out to diverse stakeholders and the general public, generating growing interest and engagement since its initiation. Forty‐four members and attendees completed the survey. Most attendees completing the evaluation survey have so far engaged in between 5 and 20 activities (47.8%), and 91% felt the aims of the Forum have been met. Engaging in the Forum has produced various benefits for attendees, including increased research capacity and knowledge, as well as improved connectivity with other stakeholders. Eleven percent of respondents, 39% of lived experts, stated they experienced improved access to postdiagnostic care. This is the first reported multistakeholder Community of Practice (CoP) on dementia and ageing. We make key recommendations for setting up and running similar dementia CoP, as they provide a noninterventional format for raising awareness, capacity and access to dementia care. This paper reports on the involvement and engagement of people with dementia, unpaid carers, health and social care providers and Third Sector organisations in a CoP.
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影响因子：
6.3
作者：
Pinzon, Maria Mora;Krainer, Jody;LeCaire, Tamara;Houston, Stephanie;Green-Harris, Gina;Norris, Nia;Barnes, Stacy;Clark, Lindsay R.;Gleason, Carey E.;Hermann, Bruce P.;Ramon, Helen;Buckingham, Will;Chin, Nathaniel A.;Asthana, Sanjay;Johnson, Sterling C.;Walaszek, Art;Carlsson, Cynthia M.
通讯作者：
Carlsson, Cynthia M.
影响因子：
3.4
作者：
Giebel, Clarissa;Cannon, Jacqueline;Gabbay, Mark
通讯作者：
Gabbay, Mark
影响因子：
3.2
作者：
Ward, Fiona;Popay, Jennie;Khedmati-Morasae, Esmaeil
通讯作者：
Khedmati-Morasae, Esmaeil
茶、谈话和技术：患者和公众参与改善痴呆症的互联健康“可穿戴设备”研究。
影响因子：
--
作者：
Hassan L;Swarbrick C;Sanders C;Parker A;Machin M;Tully MP;Ainsworth J
通讯作者：
Ainsworth J
公众参与痴呆症研究：欧洲痴呆症患者对路线图项目的贡献。
DOI：
10.1111/hex.13246
发表时间：
2021-06
期刊：
Health expectations : an international journal of public participation in health care and health policy
影响因子：
--
作者：
Diaz A;Gove D;Nelson M;Smith M;Tochel C;Bintener C;Ly A;Bexelius C;Gustavsson A;Georges J;Gallacher J;Sudlow C
通讯作者：
Sudlow C