Parent Health-Related Quality of Life for Infants with Congenital Anomalies Receiving Neonatal Intensive Care.
Parent Health-Related Quality of Life for Infants with Congenital Anomalies Receiving Neonatal Intensive Care.
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DOI：
10.1016/j.jpeds.2022.02.008
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发表时间：
2022-06
期刊：
影响因子：
--
通讯作者：
Lagatta J
中科院分区：
文献类型：
--
作者：
Acharya K;Rholl E;Malin K;Malnory M;Leuthner J;Leuthner SR;Lagatta J
目的探讨新生儿重症监护室中先天畸形患儿父母出院期间及出院后父母生活质量的相关因素。2016-2020年在IV级NICU进行的两项前瞻性队列研究的二次分析接受NICU护理的患有严重先天性畸形的婴儿的父母被纳入研究。主要结果是父母在NICU住院期间和出院后3个月的HRQL，166名父母-婴儿夫妇参加了研究，其中124人完成了3个月的随访访问。在NICU住院期间，父母有精神疾病史(−13分)、较早孕龄(−17分)、多个专家会诊(−11分)、住院时间较长(−5分)与较低的生活质量相关。新生儿外科畸形的父母有较高的HRQL(+4分)。在NICU出院后3个月，父母在NICU接受心理咨询，参与儿童护理的顾问总数，以及有非手术异常的婴儿与父母较低的HRQL相关。有胃造瘘管婴儿的父母(−6分)和再次入院(−5分)的父母的家庭生活质量较低。当我们比较同父母随着时间的推移在HRQL上的差异时，有异常婴儿的父母出院后在HRQL上没有显示出显著的改善。先天性畸形婴儿的父母报告在基线和出院时HRQL较低。患有需要多科护理的非手术、复杂医学异常的婴儿的父母代表着一个弱势群体，他们在NICU期间和之后可以得到更好的支持。
To examine factors associated with parent quality of life during and after NICU discharge among parents of infants with congenital anomalies admitted to the NICU. Secondary analysis of two prospective cohort studies between 2016–2020 at a level IV NICU; parents of infants with major congenital anomalies receiving NICU care were enrolled. The primary outcomes were parent HRQL during the NICU stay and three-months post-NICU discharge 166 parent-infant dyads were enrolled in the study, of which 124 completed the 3-month follow-up interview. During the NICU stay, parent history of a mental health disorder (−13 points), earlier gestational age (−17 points), consultation by multiple specialists (−11 points), and longer hospital stay (−5 points) were associated with lower HRQL. Parents of infants with a neonatal surgical anomaly had higher HRQL (+4 points). At 3 months after NICU discharge, parent receiving a psychology consult in the NICU, total number of consultants involved in the child’s care, and infants with non-surgical anomalies were associated with lower parent HRQL. Parents of infants with gastrostomy tubes (−6 points) and those who had hospital readmissions (−5 points) had lower HRQL. When we compared same-parent differences in HRQL over time, parents of infants with anomalies did not show significant improvement in HRQL upon discharge home. Parents of infants with congenital anomalies reported low HRQL at baseline and at discharge. Parents of infants with non-surgical, medically complex anomalies requiring multispecialty care represent a vulnerable group who could be better supported during and after the NICU.
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影响因子：
5.1
作者：
McAndrew, Sarah;Acharya, Krishna;Lagatta, Joanne M.
通讯作者：
Lagatta, Joanne M.
DOI：
10.1080/01460860290042558
发表时间：
2002-07-01
期刊：
Issues in comprehensive pediatric nursing
影响因子：
--
作者：
Ratliffe, Clark E;Harrigan, Rosanne C;Olson, Tom
通讯作者：
Olson, Tom
影响因子：
3.5
作者：
Varni, James W.;Limbers, Christine A.;Alonso, Estella M.
通讯作者：
Alonso, Estella M.
DOI：
10.1097/01.anc.0000342768.94734.23
发表时间：
2008-12-01
期刊：
Advances in neonatal care : official journal of the National Association of Neonatal Nurses
影响因子：
--
作者：
Askelsdottir, Bjork;Conroy, Sherrill;Rempel, Gwen
通讯作者：
Rempel, Gwen
影响因子：
3
作者：
Baker, Anna;Lagatta, Joanne;Acharya, Krishna
通讯作者：
Acharya, Krishna