Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.

Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.
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DOI:
10.3390/children5030032
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发表时间:
2018-02-26
期刊:
Children (Basel, Switzerland)
影响因子:
--
通讯作者:
Feudtner C
Feudtner C
中科院分区:
其他
文献类型:
--
作者:
Nelson KE;Feinstein JA;Gerhardt CA;Rosenberg AR;Widger K;Faerber JA;Feudtner C

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鉴于儿科姑息治疗(PPC)广泛关注患有潜在生命限制疾病的儿童及其家人的身体、情感和精神需求,PPC研究需要创造性的方法论方法。这份手稿由经验丰富的PPC研究人员撰写,描述了我们在自己的研究领域中遇到的问题,以及我们确定的针对这些问题的新方法。具体地说,我们讨论了潜在的方法:评估非语言儿童的症状,评估医疗干预,识别和治疗与多药联用相关的问题,解决纵向研究中缺失的数据,评估PPC干预的长期效果,以及监测PPC服务提供中的不平等。
Given the broad focus of pediatric palliative care (PPC) on the physical, emotional, and spiritual needs of children with potentially life-limiting illnesses and their families, PPC research requires creative methodological approaches. This manuscript, written by experienced PPC researchers, describes issues encountered in our own areas of research and the novel methods we have identified to target them. Specifically, we discuss potential approaches to: assessing symptoms among nonverbal children, evaluating medical interventions, identifying and treating problems related to polypharmacy, addressing missing data in longitudinal studies, evaluating longer-term efficacy of PPC interventions, and monitoring for inequities in PPC service delivery.
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