Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.
Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.
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DOI:
10.3390/children5030032
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发表时间:
2018-02-26
期刊:
影响因子:
--
通讯作者:
Feudtner C
中科院分区:
文献类型:
--
作者:
Nelson KE;Feinstein JA;Gerhardt CA;Rosenberg AR;Widger K;Faerber JA;Feudtner C
Given the broad focus of pediatric palliative care (PPC) on the physical, emotional, and spiritual needs of children with potentially life-limiting illnesses and their families, PPC research requires creative methodological approaches. This manuscript, written by experienced PPC researchers, describes issues encountered in our own areas of research and the novel methods we have identified to target them. Specifically, we discuss potential approaches to: assessing symptoms among nonverbal children, evaluating medical interventions, identifying and treating problems related to polypharmacy, addressing missing data in longitudinal studies, evaluating longer-term efficacy of PPC interventions, and monitoring for inequities in PPC service delivery.
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