Oral Health Barriers for African American Caregivers of Autistic Children.
Oral Health Barriers for African American Caregivers of Autistic Children.
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DOI：
10.3390/ijerph192417067
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发表时间：
2022-12-19
影响因子：
--
通讯作者：
Cermak, Sharon A.
中科院分区：
文献类型：
--
作者：
Como, Dominique H.;Florindez-Cox, Lucia, I;Duker, Leah I. Stein;Cermak, Sharon A.
美国最持久的口腔健康差异影响着少数种族和族裔群体的儿童以及被诊断为自闭症的儿童。本文旨在描述自闭症儿童的黑人/非裔美国人 (B/AA) 父母所描述的口腔护理障碍，以进一步探讨该人群中口腔健康差异如何以及为何持续存在。我们对 11 名 4 至 14 岁自闭症儿童的照顾者进行了有目的的抽样调查，他们被认定为 B/AA，接受了两次采访，每次约 60-90 分钟。采用了利用叙事方法的主题分析。关于影响口腔健康体验的障碍的数据中出现了三个主题：(a) 维持良好口腔健康习惯的困难，(b) 获得护理和资源的挑战，以及 (c) 患者与提供者关系不佳。由于对自闭症、B/AA 文化和口腔健康实践的交叉点的研究有限，本研究提供了家庭在获得口腔护理时面临的障碍的丰富图片。许多家庭提出了其他自闭症儿童家长也发现的问题。 B/AA 护理人员已经证明，尽管他们自己有过负面的牙科经历，但他们了解良好口腔护理实践的价值，并愿意为孩子进行口腔护理。
The most persistent oral health disparities in the United States impact children from racial and ethnic minoritized groups and children diagnosed as autistic. This paper aims to describe barriers to oral care as depicted by Black/African American (B/AA) parents of autistic children to further explore how and why oral health disparities persist in this population. A purposeful sample of eleven caregivers of autistic children, ages 4 to 14 years, who identified as B/AA were interviewed twice for approximately 60–90 min each. Thematic analysis utilizing a narrative approach was employed. Three themes emerged from the data concerning the barriers that affect oral health experiences: (a) difficulty in maintaining good oral health practices, (b) challenges with access to care and resources, and (c) poor patient-provider relationships. Due to the limited research that examines the intersection of autism, B/AA culture, and oral health practices, this study provides a rich picture of the barriers families face when obtaining oral care. Many families raised issues that other parents of autistic children also identified. B/AA caregivers have demonstrated that despite their own negative dental experiences, they understand the value of good oral care practices and are willing to pursue oral care for their children.
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DOI：
10.3390/ijerph18073751
发表时间：
2021-04-03
影响因子：
--
作者：
Floríndez LI;Floríndez DC;Price ME;Floríndez FM;Como DH;Polido JC;Baezconde-Garbanati L;Pyatak E;Cermak SA
通讯作者：
Cermak SA
影响因子：
2.5
作者：
Duker, Leah I. Stein;Henwood, Benjamin F.;Cermak, Sharon A.
通讯作者：
Cermak, Sharon A.
影响因子：
5.4
作者：
Archibald, Mandy M.;Ambagtsheer, Rachel C.;Lawless, Michael
通讯作者：
Lawless, Michael
影响因子：
2.1
作者：
Flores, Gabriela;Krishnakumar, Jaya;Van Doorslaer, Eddy
通讯作者：
Van Doorslaer, Eddy
影响因子：
12.7
作者：
Cristina Guarnizo-Herreno, Carol;Wehby, George L.
通讯作者：
Wehby, George L.