Project connect online: user and visitor experiences of an Internet-based intervention for women with breast cancer.
Project connect online: user and visitor experiences of an Internet-based intervention for women with breast cancer.
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DOI：
10.1002/pon.3734
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发表时间：
2015-09
期刊：
影响因子：
3.6
通讯作者：
Stanton, Annette L.
中科院分区：
文献类型：
--
作者：
Harris, Lauren N.;Cleary, Elizabeth H.;Stanton, Annette L.
本研究的目的是描述乳腺癌患者的经验，随机分配到项目连接在线（PCO），一个基于互联网的干预随机对照试验的干预臂，并检查网站使用变量和心理社会结果之间的关系。在更大的PCO试验中，乳腺癌患者（N = 88）被随机分配到干预组或等待名单对照组。本报告涉及干预组的46名妇女，这是一个为期三小时的讲习班，目的是创建具有博客功能的个人网站，与其人际网络进行交流，并记录其经历。参与者在一个月和六个月时完成评估。网站访问者（N = 66）完成了在线问卷调查。对网站使用的反应是积极的，尽管缺乏时间是一些人的障碍。患有晚期癌症的女性更有可能使用他们的网站。妇女发现这些网站有助于讲述她们的经历和表达情感。积极的词汇使用与六个月时积极情绪的提高有关;消极的词汇使用与抑郁症状的改善有关。访问者最常见的是参与者的女性朋友，他们重视网站作为与参与者进行情感联系并获得有关其健康信息的一种方式。患者博客的特定方面预测了心理社会功能的改善。个人网站可以帮助患有乳腺癌的女性构建他们的经历，表达情感，并获得他们需要的社会支持，特别是来自朋友和大家庭的支持。
This study's purpose was to characterize the experience of breast cancer patients randomly assigned to the intervention arm of Project Connect Online (PCO), a randomized controlled trial of an Internet-based intervention, and to examine relationships between website use variables and psychosocial outcomes. In the larger PCO trial, breast cancer patients (N = 88) were randomly assigned to an intervention or a waiting-list control. This report pertains to the 46 women in the intervention arm, a three-hour workshop for creation of personal websites with a blog function to communicate with their interpersonal network and chronicle their experience. Participants completed assessments at one and six months. Visitors to the websites (N = 66) completed an online questionnaire. Reactions to website use were positive, although lack of time was a barrier for some. Women with advanced cancer were more likely to use their websites. Women found the websites useful for telling the story of their experience and expressing emotions. Positive word use was associated with heightened positive mood at six months; negative word use was associated with improved depressive symptoms. Visitors were most commonly female friends of participants who valued the websites as a way to connect emotionally with participants and receive information about their health. Specific aspects of patients' blogs predicted improvements in psychosocial functioning. Personal websites can help women with breast cancer construct a narrative of their experience, express emotions, and receive the social support they need, particularly from friends and extended family.
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影响因子：
3.3
作者：
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通讯作者：
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影响因子：
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作者：
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