Archetypal trajectories of social, psychological, and spiritual wellbeing and distress in family care givers of patients with lung cancer: secondary analysis of serial qualitative interviews.
Archetypal trajectories of social, psychological, and spiritual wellbeing and distress in family care givers of patients with lung cancer: secondary analysis of serial qualitative interviews.
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DOI：
10.1136/bmj.c2581
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发表时间：
2010-06-09
期刊：
影响因子：
--
通讯作者：
Sheikh A
中科院分区：
文献类型：
--
作者：
Murray SA;Kendall M;Boyd K;Grant L;Highet G;Sheikh A
目的评估肺癌患者从确诊到死亡的过程中，其家庭照顾者是否经历了肺癌患者典型的社会、心理和精神健康和痛苦模式。 设计二次分析的系列定性访谈进行了长达一年或丧亲之痛，每三个月。苏格兰东南部。参与者19例肺癌患者和他们的19个家庭照顾者，共88次访谈（42例患者和46例照顾者）。结果照顾者遵循明确的社会，心理和精神健康和痛苦的模式，反映了他们所照顾的人的经历，一些照顾者也经历了身体健康状况的恶化，影响了他们的照顾能力。心理和精神上的痛苦特别活跃，而且普遍存在。除了“为什么是我们？”在回答问题时，目睹痛苦引发了护理人员对生命意义和目的的个人思考。疾病中的某些关键时间点往往对护理人员和患者都特别有问题：诊断时，初始治疗后在家，复发时和终末期。结论家属见证并分享了临终病人的许多疾病经历。肺癌患者所遭受的痛苦的多维体验反映在他们的照顾者在社会，心理和精神领域的痛苦，心理和精神痛苦是最明显的。照顾者可能需要在整个患病期间得到支持，而不仅仅是在临终阶段和丧亲之痛期间，目前的情况往往如此。
Objective To assess if family care givers of patients with lung cancer experience the patterns of social, psychological, and spiritual wellbeing and distress typical of the patient, from diagnosis to death. Design Secondary analysis of serial qualitative interviews carried out every three months for up to a year or to bereavement. Setting South east Scotland. Participants 19 patients with lung cancer and their 19 family carers, totalling 88 interviews (42 with patients and 46 with carers). Results Carers followed clear patterns of social, psychological, and spiritual wellbeing and distress that mirrored the experiences of those for whom they were caring, with some carers also experiencing deterioration in physical health that impacted on their ability to care. Psychological and spiritual distress were particularly dynamic and commonly experienced. In addition to the “Why us?” response, witnessing suffering triggered personal reflections in carers on the meaning and purpose of life. Certain key time points in the illness tended to be particularly problematic for both carers and patients: at diagnosis, at home after initial treatment, at recurrence, and during the terminal stage. Conclusions Family carers witness and share much of the illness experience of the dying patient. The multidimensional experience of distress suffered by patients with lung cancer was reflected in the suffering of their carers in the social, psychological, and spiritual domains, with psychological and spiritual distress being most pronounced. Carers may need to be supported throughout the period of illness not just in the terminal phase and during bereavement, as currently tends to be the case.
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影响因子：
3.6
作者：
Bowman, KF;Deimling, GT;Kahana, B
通讯作者：
Kahana, B
影响因子：
5.4
作者：
Hodges, LJ;Humphris, GM;Macfarlane, G
通讯作者：
Macfarlane, G
影响因子：
120.7
作者：
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影响因子：
4.4
作者：
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通讯作者：
Benton, TF
影响因子：
4.7
作者：
Murray, Scott A.;Kendall, Marilyn;Sheikh, Aziz
通讯作者：
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