"I was Confused … and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study.
"I was Confused … and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study.
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DOI：
10.1007/s10803-021-05047-z
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发表时间：
2022-04
影响因子：
3.9
通讯作者：
Divan G
中科院分区：
文献类型：
--
作者：
Bhavnani S;Lockwood Estrin G;Arora R;Kumar D;Kakra M;Vajaratkar V;Juneja M;Gulati S;Patel V;Green J;Divan G
及时识别儿童自闭症对于改善发展结果是不可或缺的。本研究采用混合方法（84例病例登记和20次对自闭症儿童的照顾者的深度访谈）来探讨父母关注的性质和对发育障碍的先验知识在多大程度上影响症状识别和自闭症诊断之间的时间，以及阻碍自闭症寻求帮助途径的背景家庭、社会和卫生系统相关因素。社区和卫生专业人员明显缺乏对与年龄相适应的儿童发展里程碑的认识，导致父母关注和自闭症诊断之间的时间延迟了1.5年。缩短这一求助途径的建议包括利用非专业工作者的潜力，提高认识，并通过可扩展的工具对幼儿进行发育监测。在线版本包含补充资料，网址为10.1007/s10803-021-05047-z。
Timely recognition of autism in children is integral to improve developmental outcomes. This study used mixed-methods (84 case-registers and 20 in-depth interviews with caregivers of children with a diagnosis of autism) to explore the extent to which the nature of parental concerns and prior knowledge of developmental disorders impact the time between symptom recognition and autism diagnosis, and the contextual family, societal and health-system related factors that impede the autism help-seeking pathway. Lack of awareness of age-appropriate child developmental milestones, apparent amongst the community and health professionals, contributed to a 1.5-year delay between parental concerns and autism diagnosis. Recommendations to shorten this help-seeking pathway include harnessing the potential of non-specialist workers to increase awareness and enable developmental monitoring of young children through scalable tools. The online version contains supplementary material available at 10.1007/s10803-021-05047-z.
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DOI：
10.1002/aur.2276
发表时间：
2020-07
期刊：
Autism research : official journal of the International Society for Autism Research
影响因子：
--
作者：
de Leeuw A;Happé F;Hoekstra RA
通讯作者：
Hoekstra RA
DOI：
10.1080/09540261.2018.1432574
发表时间：
2018-03
期刊：
International review of psychiatry (Abingdon, England)
影响因子：
--
作者：
Landa RJ
通讯作者：
Landa RJ
影响因子：
6.2
作者：
Halladay AK;Bishop S;Constantino JN;Daniels AM;Koenig K;Palmer K;Messinger D;Pelphrey K;Sanders SJ;Singer AT;Taylor JL;Szatmari P
通讯作者：
Szatmari P
影响因子：
3.8
作者：
Lockwood Estrin G;Milner V;Spain D;Happé F;Colvert E
通讯作者：
Colvert E
影响因子：
4
作者：
Gale NK;Heath G;Cameron E;Rashid S;Redwood S
通讯作者：
Redwood S