Understanding the Family Perspective on the Storage, Sharing and Handling of Family Civic Data
Understanding the Family Perspective on the Storage, Sharing and Handling of Family Civic Data
复制标题
了解家庭对家庭公民数据存储、共享和处理的看法
DOI：
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发表时间：
2018
期刊：
影响因子：
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通讯作者：
Madeline Balaam
中科院分区：
文献类型：
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作者：
Alex Bowyer;Kyle Montague;S. Wheater;R. McGovern;R. Lingam;Madeline Balaam
在“大数据”革命（它使大规模基于数据的决策规范化）的推动下，在社会关怀、医疗保健和公共政策领域，出现了“联合”公民数据库的举措，为护理人员提供他们所支持家庭的整体视图。在这种情况下，个人数据隐私、安全、访问、控制和（非）授权等问题是系统设计者和政策制定者的关键考虑因素。为了探索家庭视角下的这一景观，我们称之为家庭公民数据，我们对四个东北家庭进行了民族志采访。我们基于设计游戏的访谈有效地吸引了成人和儿童谈论这个枯燥的技术话题对他们生活的影响。我们的研究结果以设计指南的形式发布，显示了对动态同意的支持：如果通过与国家福利和市政当局的数据共享互动，参与到持续的合作关系中，家庭将感到最有权力。
Across social care, healthcare and public policy, enabled by the "big data" revolution (which has normalized large-scale data-based decision-making), there are moves to "join up" citizen databases to provide care workers with holistic views of families they support. In this context, questions of personal data privacy, security, access, control and (dis-)empowerment are critical considerations for system designers and policy makers alike. To explore the family perspective on this landscape of what we call Family Civic Data, we carried out ethnographic interviews with four North-East families. Our design-game-based interviews were effective for engaging both adults and children to talk about the impact of this dry, technical topic on their lives. Our findings, delivered in the form of design guidelines, show support for dynamic consent: families would feel most empowered if involved in an ongoing co-operative relationship with state welfare and civic authorities through shared interaction with their data.
通过个性化数据表示改善大规模移动 HCI 的同意
DOI：
10.1145/2639189.2639239
发表时间：
2014
期刊：
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影响因子：
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作者：
Morrison A
通讯作者：
Morrison A