Caregiving burden, stress, and health effects among family caregivers of adult cancer patients.

Caregiving burden, stress, and health effects among family caregivers of adult cancer patients.
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DOI:
10.1001/jama.2012.29
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发表时间:
2012-01-25
影响因子:
120.7
通讯作者:
Sternberg, Esther M.
Sternberg, Esther M.
中科院分区:
医学1区
文献类型:
--
作者:
Bevans, Margaret;Sternberg, Esther M.

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与医生和护士等专业护理者不同,非正式的护理者,通常是家人或朋友,为患有各种疾病的人提供护理,包括高龄、痴呆症和癌症。这种经历通常被认为是一种慢性压力源,照顾者经常会对他们的日常生活和健康产生负面的心理、行为和生理影响。在这篇报道中,我们描述了一位53岁的妇女的经历,她是她丈夫的唯一照顾者,她患有急性髓系白血病,正在接受异基因造血干细胞移植。在他紧张而不可预测的过程中,照顾者的负担是复杂的,而且由于多个相互竞争的优先事项而变得复杂。由于照顾者经常面临多个同时发生的压力事件和持续的、持续的压力,他们可能会经历负面的健康影响,部分原因是免疫和自主神经失调。医生和他们的跨学科团队每天都会与提供这种护理的个人见面,并有机会进行干预。这份报告描述了一个例证护理负担的案例,并讨论了确定面临负面健康结果风险的照顾者并进行干预以减轻与护理经历相关的压力的重要性。
Unlike professional caregivers such as physicians and nurses, informal caregivers, typically family members or friends, provide care to individuals with a variety of conditions including advanced age, dementia, and cancer. This experience is commonly perceived as a chronic stressor, and caregivers often experience negative psychological, behavioral, and physiological effects on their daily lives and health. In this report, we describe the experience of a 53-yearold woman who is the sole caregiver for her husband, who has acute myelogenous leukemia and was undergoing allogeneic hematopoietic stem cell transplantation. During his intense and unpredictable course, the caregiver's burden is complex and complicated by multiple competing priorities. Because caregivers are often faced with multiple concurrent stressful events and extended, unrelenting stress, they may experience negative health effects, mediated in part by immune and autonomic dysregulation. Physicians and their interdisciplinary teams are presented daily with individuals providing such care and have opportunity to intervene. This report describes a case that exemplifies caregiving burden and discusses the importance of identifying caregivers at risk of negative health outcomes and intervening to attenuate the stress associated with the caregiving experience.
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