Health-related quality of life in children with sickle cell disease using the child health questionnaire.
Health-related quality of life in children with sickle cell disease using the child health questionnaire.
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DOI：
10.1016/j.pedhc.2012.09.004
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发表时间：
2014-01
期刊：
影响因子：
--
通讯作者：
Stallings VA
中科院分区：
文献类型：
--
作者：
Wrotniak BH;Schall JI;Brault ME;Balmer DF;Stallings VA
This study sought to determine if changes in parent-reported health-related quality of life (HRQOL) in children with sickle cell disease (SCD-SS) occurred after participation in a nutritional supplementation study, and to compare HRQOL responses with normative scores from non-Caucasian children. Parents of children with SCD-SS between the ages of 5 and 13 completed the Child Health Questionnaire (CHQ-PF50) at baseline and 12 months. For the 47 children (8.6 ± 2.4 yrs, 43% female), baseline CHQ scale scores were significantly lower than normative scale scores for parental emotional impact, general health, and overall physical health, but higher for mental health. After the nutritional supplementation study, overall physical health and parental emotional impact improved to normative levels. Furthermore, physical role functioning significantly improved. Participation in a nutritional study had a positive impact on parent-reported HRQOL physical scores in children with SCD-SS. More research is necessary to develop care providers’ awareness and adequate HRQOL interventions for this population.
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影响因子：
3.1
作者：
Palermo, TM;Schwartz, L;McGowan, K
通讯作者：
McGowan, K
影响因子：
2.8
作者：
Dale, Juanita Conkin;Cochran, Cindy J.;Buchanan, George R.
通讯作者：
Buchanan, George R.
影响因子：
4
作者：
Palermo, Tonya M.;Riley, Craig A.;Mitchell, Brian A.
通讯作者：
Mitchell, Brian A.
影响因子：
3.6
作者：
Erhart, Michael;Ellert, Ute;Ravens-Sieberer, Ulrike
通讯作者：
Ravens-Sieberer, Ulrike
DOI：
10.1097/mph.0b013e318200ef49
发表时间：
2011-03
期刊：
Journal of pediatric hematology/oncology
影响因子：
--
作者：
Dougherty KA;Schall JI;Rovner AJ;Stallings VA;Zemel BS
通讯作者：
Zemel BS