How COVID-19 Has Affected Caregivers' Burden of Patients with Dementia: An Exploratory Study Focusing on Coping Strategies and Quality of Life during the Lockdown.
How COVID-19 Has Affected Caregivers' Burden of Patients with Dementia: An Exploratory Study Focusing on Coping Strategies and Quality of Life during the Lockdown.
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DOI：
10.3390/jcm10245953
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发表时间：
2021-12-18
影响因子：
3.9
通讯作者：
Calabrò RS
中科院分区：
文献类型：
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作者：
Maggio MG;La Rosa G;Calatozzo P;Andaloro A;Foti Cuzzola M;Cannavò A;Militi D;Manuli A;Oddo V;Pioggia G;Calabrò RS
新冠肺炎引发了一场公共和国际卫生突发事件，导致了孤立和社会疏远。这些限制对痴呆症患者的照顾者产生了重大影响，增加了患者管理的负担。这项研究的目的是调查阿尔茨海默病(AD)患者的照顾者在大流行期间感受到的压力。我们使用横断面调查设计来评估照顾者的心理反应和应对策略。84名被诊断为阿尔茨海默病患者的照顾者参与了这项研究，他们完成了一份在线问卷。他们对压力有较高的知觉(知觉压力量表平均为±DS：33.5±4.5)，护理负担较高主要与身体困难(照顾者负担量表-身体负担平均±DS：15.0±2.1)和感觉时间损失(照顾者负担问卷-时间依赖负担平均±DS：16.5±1.4)有关。此外，照顾者认为自己的生活质量很低(简明12健康调查物理平均值±DS：13.5±2.7；简明12健康调查精神健康平均值±DS：16.4±4.2)。最后，我们发现被试大多使用功能障碍应对策略，如回避策略(对问题体验的应对倾向-回避策略均值±DS：39.5±7.1)，但这些策略并不影响照顾者的压力水平。鉴于照顾者带来了很高的负担和压力，创新的工具可能是一个有价值的解决方案，可以在困难时期调查和支持他们的情绪和行为状况，例如新冠肺炎大流行。
COVID-19 has caused a public and international health emergency, leading to isolation and social distancing. These restrictions have had a significant impact on the caregivers of people with dementia, increasing the burden of patient management. The purpose of this study was to investigate the stress perceived by caregivers of patients with Alzheimer’s disease (AD) during the pandemic. We used a cross-sectional survey design to evaluate the caregivers’ psychological responses and coping strategies. Eighty-four caregivers of patients with a diagnosis of AD were involved in this study by completing an online questionnaire. They presented a high perception of stress (the Perceived Stress Scale mean ± DS: 33.5 ± 4.5), and their high burden in caring was mainly related to physical difficulties (Caregiver Burden Inventory–Physical Burden mean ± DS: 15.0 ± 2.1) and perception of loss of time (Caregiver Burden Inventory–Time-dependence Burden mean ± DS: 16.5 ± 1.4). Moreover, caregivers perceived their quality of life as very low (Short Form-12 Health Survey Physical mean ± DS: 13.5 ± 2.7; Short Form-12 Health Survey Mental Health mean ± DS: 16.4 ± 4.2). Finally, we found that participants mostly used dysfunctional coping strategies, such as avoidance strategies (Coping Orientation to Problem Experiences–Avoidance Strategies mean ± DS: 39.5 ± 7.1), but these strategies did not affect the stress level of caregivers. Given that caregivers present a high burden and stress, innovative tools could be a valuable solution to investigate and support their emotional and behavioral status during difficult periods, such as the COVID-19 pandemic.
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影响因子：
11.8
作者：
Hawryluck L;Gold WL;Robinson S;Pogorski S;Galea S;Styra R
通讯作者：
Styra R
DOI：
10.3390/medicina57111159
发表时间：
2021-10-25
期刊：
Medicina (Kaunas, Lithuania)
影响因子：
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作者：
Hardan L;Filtchev D;Kassem R;Bourgi R;Lukomska-Szymanska M;Tarhini H;Salloum-Yared F;Mancino D;Kharouf N;Haikel Y
通讯作者：
Haikel Y
影响因子：
5.7
作者：
NOVAK, M;GUEST, C
通讯作者：
GUEST, C
影响因子：
4.7
作者：
Baschi R;Luca A;Nicoletti A;Caccamo M;Cicero CE;D'Agate C;Di Giorgi L;La Bianca G;Lo Castro T;Zappia M;Monastero R
通讯作者：
Monastero R
DOI：
10.1016/j.jagp.2020.10.009
发表时间：
2021-01
期刊：
The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
影响因子：
--
作者：
Altieri M;Santangelo G
通讯作者：
Santangelo G