The Need for Stability in Paid Dementia Care: Family Caregiver Perspectives.

The Need for Stability in Paid Dementia Care: Family Caregiver Perspectives.
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DOI:
10.1177/07334648221097692
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发表时间:
2023-04
影响因子:
3
通讯作者:
Franzosa, Emily
Franzosa, Emily
中科院分区:
医学3区
文献类型:
--
作者:
Reckrey, Jennifer M.;Perez, Sasha;Watman, Deborah;Ornstein, Katherine A.;Russell, David;Franzosa, Emily

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有偿护理人员(例如,家庭健康助理,家庭护理工作者)提供基本护理的人住在家里的痴呆症;这项研究探讨了家庭照顾者的角度的作用和影响,有偿照顾者在家庭为基础的痴呆症护理。我们对2020年10月至2020年12月期间在纽约家中接受长期有偿护理的晚期痴呆症患者的家庭照顾者(n = 15)进行了半结构化访谈。我们发现,鉴于晚期痴呆症导致的脆弱性,家庭照顾者优先考虑寻找“正确”的有偿照顾者,并重视个人提供护理的连续性。稳定的有偿护理改善了晚期痴呆症患者的预后(例如,吃得更好)和他们的家庭(例如,工作能力)。那些倡导高质量、以人为本的痴呆症护理的人应该与政策制定者和家庭护理机构合作,为生活在家里的晚期痴呆症患者提供稳定的匹配的有偿护理人员。
Paid caregivers (e.g., home health aides, home care workers) provide essential care to people with dementia living at home; this study explored family caregiver perspectives on the role and impact of paid caregivers in home-based dementia care. We conducted semi-structured interviews with family caregivers (n=15) of people with advanced dementia who received long-term paid care at home in New York between October 2020 and December 2020. We found that given the vulnerability resulting from advanced dementia, family caregivers prioritized finding the “right” paid caregivers and valued continuity in the individual providing care. The stable paid care that resulted improved outcomes for both the person with advanced dementia (e.g., eating better) and their family (e.g., ability to work). Those advocating for high quality, person-centered dementia care should partner with policymakers and home care agencies to promote the stability of well-matched paid caregivers for people with advanced dementia living at home.
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发表时间: 2022-01-25
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