Long-term impact of a Q-fever outbreak: An evaluation of health symptoms, health-related quality of life, participation and health care satisfaction after ten years.
Long-term impact of a Q-fever outbreak: An evaluation of health symptoms, health-related quality of life, participation and health care satisfaction after ten years.
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DOI：
10.1016/j.jpsychores.2020.110258
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发表时间：
2020-12
影响因子：
4.7
通讯作者：
Polinder S
中科院分区：
文献类型：
--
作者：
Bronner MB;Haagsma JA;Dontje ML;Barmentloo L;Kouwenberg RMCEJ;Olde Loohuis AGM;de Groot A;Erasmus V;Polinder S
评估Q热患者感染后长达10年的健康症状、健康相关生活质量、参与度和卫生保健满意度。荷兰的横断面问卷调查。在慢性Q热（CQ）、Q热疲劳综合征（QFS）和发生QFS样疾病但未进行感染后诊断（QLD）的患者中收集了关于健康症状、疲劳（CIS）、健康相关生活质量（EQ-5D）、社会/工作参与、医疗保健提供者和医疗保健满意度的数据。478名Q热患者中的绝大多数（应答率54.3%）在感染10年后面临几个健康问题。疲劳是所有组中最常见的症状（91.2%）。三个诊断组之间的中位EQ-5D指数值存在显著差异（CQ：0.67; QFS：0.55; QLD：0.70; p < 0.001）。大约50%的患者在工作和身体活动方面存在严重问题，超过25%的患者在休闲时间、家庭和社会接触方面存在困难。此外，三分之一以上的人永久停止工作。此外，全科医生，内科医生和物理治疗师是最经常咨询的卫生保健提供者。患者对Q热的整体护理质量评分较低，75%的患者在10分制量表上得分为5.0或更低。长期的健康后果是相当大的Q热患者，特别是那些与QFS。大部分病人对Q热的照护品质不满意。需要认识到Q热等人畜共患疾病的长期影响，以便为这些患者提供最佳的卫生保健。这项研究强调了Q热爆发对健康的巨大长期影响。除了重大的健康影响，Q热还具有重大的社会经济影响。需要认识到Q热等人畜共患疾病的长期影响。
To assess health symptoms, health-related quality of life, participation, and health care satisfaction in Q-fever patients up to 10 years after infection. Cross-sectional questionnaire survey in the Netherlands. Data on health symptoms, fatigue (CIS), health-related quality of life (EQ-5D), social/work participation, health care providers and health care satisfaction were collected in patients with chronic Q-fever (CQ), Q-fever fatigue syndrome (QFS), and patients who experience QFS-like disease without a post-infection diagnosis (QLD). A vast majority of the 478 Q-fever patients (response rate 54.3%) face several health problems 10 years after infection. Fatigue was the most prevalent symptom in all groups (91.2%). The median EQ-5D index value differed significantly between the three diagnostic groups (CQ: 0.67; QFS: 0.55; QLD:0.70; p < 0.001). Approximately 50% of all patients had serious problems with work and physical activities, and more than 25% experienced difficulties with leisure time, household and social contacts. Also, more than one third stopped working permanently. Furthermore, GP's, internists, and physical therapists were the most often consulted health care providers. Patients gave low ratings for the overall quality of care for Q-fever, with 75% scoring a 5.0 or lower on a 10-point scale. Long-term health consequences are considerable for Q-fever patients, especially for those with QFS. The majority of the patients was unsatisfied with the quality of care for Q-fever. Awareness of the long-term impact of zoonotic diseases like Q-fever is needed to offer optimal health care for these patients. This study highlights the enormous long-term health impact of a Q-fever outbreak. Alongside major health impact, Q-fever has significant socioeconomic implications. Awareness of the long-term impact of zoonotic diseases like Q-fever is needed.
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影响因子：
4.7
作者：
Worm-Smeitink, M.;Gielissen, M.;Knoop, H.
通讯作者：
Knoop, H.
影响因子：
4.2
作者：
Dijkstra, F.;Riphagen-Dalhuisen, J.;van der Hoek, W.
通讯作者：
van der Hoek, W.
影响因子：
4.2
作者：
Limonard, G. J. M.;Peters, J. B.;Nabuurs-Franssen, M. H.
通讯作者：
Nabuurs-Franssen, M. H.
影响因子：
4.5
作者：
Versteegh, Matthijs M.;Vermeulen, Karin M.;Stolk, Elly A.
通讯作者：
Stolk, Elly A.
DOI：
10.1136/bmj.d4163
发表时间：
2011-07-26
期刊：
BMJ (Clinical research ed.)
影响因子：
--
作者：
Huber, Machteld;Knottnerus, J Andre;Smid, Henk
通讯作者：
Smid, Henk