Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians.

Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians.
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DOI:
10.1016/j.rasd.2021.101859
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发表时间:
2021-10
影响因子:
2.5
通讯作者:
Wong M
Wong M
中科院分区:
医学3区
文献类型:
--
作者:
Gibbs V;Cai RY;Aldridge F;Wong M

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2019冠状病毒病大流行期间,使用远程医疗为自闭症患者及其家庭提供服务的人数迅速增加。通过远程保健提供自闭症评估的研究是有限的,很少有研究探讨临床医生的角度进行诊断评估自闭症以这种方式。本研究的目的是审查一个新的远程保健模式的角度来看,在澳大利亚社区为基础的样本,即客户进行评估,父母/护理人员和专家临床医生的主要利益相关者群体的可接受性。16名成人客户(法师= 39.00,SDage = 14.39)和五十六名儿童和成人的父母/照顾者(法师= 44.09,SDage = 9.87)接受自闭症评估完成了一项在线调查,通过远程医疗评估他们的经验。其中,6名客户和12名家长/照顾者同意参加后续访谈。还采访了7名临床医生。在这项研究中,大多数成年人和父母/照顾者报告说,他们或他们照顾的人感到与临床医生互动很舒服,愿意通过远程医疗接受未来的评估,并且不担心在评估过程中遗漏了重要信息。虽然临床医生对远程评估过程的满意度略低于面对面评估,并且比面对面评估期间更依赖外部信息来源,但他们对诊断决策的总体信心仍然很高。在某些情况下,通过远程保健进行自闭症评估可能是一种可接受的替代办法。然而,远程保健服务应考虑对客户进行适合性筛查,并使客户为远程评估做好充分准备。
The COVID-19 pandemic has seen a rapid increase in the use of telehealth to deliver services to autistic individuals and their families. Research into the provision of autism assessments via telehealth is limited and few studies have explored clinician perspectives of conducting diagnostic assessments for autism in this way. The objective of this study was to examine the acceptability of a new telehealth model from the perspective of key stakeholder groups in an Australian community-based sample i.e. clients undergoing assessment, parent/carers and expert clinicians. Sixteen adult clients (Mage = 39.00, SDage = 14.39) and fifty-six parent/carers of children and adults (Mage = 44.09, SDage = 9.87) undergoing autism assessments completed an online survey about their experiences of assessments via telehealth. Of these, six clients and twelve parent/carers agreed to participate in follow up interviews. Seven clinicians were also interviewed. In this study, the majority of adults and parent/carers reported that they, or the person they cared for, felt comfortable interacting with the clinician, would be willing to undergo future assessments via telehealth and were not concerned that important information had been missed during the assessment. Although the clinicians were slightly less satisfied with tele-assessment process compared to face-to-face and relied on external sources of information more than they would during a face-to-face assessment, their overall confidence in their diagnostic decision making remained high. Autism assessment via telehealth may be an acceptable alternative in some circumstances. However, a telehealth service should consider screening clients for suitability and adequately preparing clients for tele-assessments.
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