Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding.
Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding.
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DOI：
10.1111/epi.12056
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发表时间：
2013-02
期刊：
影响因子：
5.6
通讯作者：
Austin JK
中科院分区：
文献类型：
--
作者：
Hesdorffer DC;Beck V;Begley CE;Bishop ML;Cushner-Weinstein S;Holmes GL;Shafer PO;Sirven JI;Austin JK
2012年3月，美国医学研究所（IOM）发布了一份名为《癫痫病：促进健康和理解》的报告。该报告审查了癫痫的公共卫生方面，重点是四个领域：公共卫生监测和数据收集和整合;人口和公共卫生研究;卫生政策，卫生保健和人类服务;以及对提供者，癫痫患者及其家人和公众的教育。该报告为癫痫领域今后的工作提出了建议和研究重点，涉及：提高癫痫数据的效力;预防癫痫;改善癫痫患者的保健;改善关于癫痫的卫生专业教育;改善癫痫患者的生活质量;改善癫痫患者及其家庭的癫痫教育;提高公众对癫痫的认识。在这篇文章中，作者从IOM报告的每个主要章节主题中选择了一个研究重点：扩大和提高癫痫流行病学监测的质量;为癫痫和抑郁症患者制定更好的干预措施;扩大癫痫儿童学习障碍的早期识别/筛查;评估和促进有效的创新教学策略;加快研究确定风险因素和干预措施，增加就业和改善癫痫患者及其家人的生活质量;评估癫痫患者及其家人对癫痫相关风险的信息需求，特别是癫痫的意外猝死;制定和开展调查，以捕捉随着时间的推移和特定人群亚组中有关癫痫的知识、意识、态度和信念的趋势。对于每一个选定的研究重点，研究的例子提供，将推进癫痫领域和改善癫痫患者的生活。IOM的报告还有许多其他研究重点，供研究人员考虑开发，以推进癫痫领域的发展，改善癫痫患者的生活。
In March 2012 the Institute of Medicine (IOM) released the report, Epilepsy Across The Spectrum: Promoting Health And Understanding. This report examined the public health dimensions of the epilepsies with a focus on four areas: public health surveillance and data collection and integration; population and public health research; health policy, health care, and human services; and education for providers, people with epilepsy and their families, and the public. The report provided recommendations and research priorities for future work in the field of epilepsy that relate to: increasing the power of data on epilepsy; prevention of epilepsy; improving health care for people with epilepsy; improving health professional education about epilepsy; improving quality of life for people with epilepsy; improving education about epilepsy for people with epilepsy and families; and raising public awareness about epilepsy. For this article, the authors selected one research priority from each of the major chapter themes in the IOM report: expanding and improving the quality of epidemiological surveillance in epilepsy; developing improved interventions for people with epilepsy and depression; expanding early identification/screening for learning impairments in children with epilepsy; evaluating and promoting effective innovative teaching strategies; accelerating research on the identification of risk factors and interventions that increase employment and improve quality of life for people with epilepsy and their families; assessing the information needs of people with epilepsy and their families associated with epilepsy-related risks, specifically sudden unexpected death in epilepsy; and developing and conducting surveys to capture trends in knowledge, awareness, attitudes, and beliefs about epilepsy over time and in specific population subgroups. For each research priority selected, examples of research are provided that will advance the field of epilepsy and improve the lives of people with epilepsy. The IOM report has many other research priorities for researchers to consider developing to advance the field of epilepsy and better the lives of people with epilepsy.
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