Potential psychological benefits from early treatment of port‐wine stains in children
Potential psychological benefits from early treatment of port‐wine stains in children
复制标题
儿童鲜红斑痣早期治疗的潜在心理益处
DOI：
10.1046/j.1365-2133.1998.02314.x
复制
发表时间：
1998
影响因子：
10.3
通讯作者：
B. Ljunggren
中科院分区：
文献类型：
--
作者：
A. Troilius;B. Wrangsjö;B. Ljunggren
在转诊医生中有一种普遍的观点，即患有先天性毛细血管畸形的非常小的儿童，即所谓的鲜红斑点(PWS)，应该在他们长大后再进行治疗。我们的经验使我们相信，闪光灯脉冲染料激光是一种安全有效的治疗方法，即使对婴儿也是如此。我们没有遇到任何持续性的色素沉着改变，治疗后的疤痕形成或其他不良反应。重要的是量化与这种疾病相关的心理残疾，以评估治疗的需要和好处。对259例因PWS就诊的患者及其家属进行问卷调查。正在等待激光治疗、正在接受治疗或已经完成治疗的患者收到了不同的问卷。有效率为89%。他遇到了高度的情绪困扰。在10~20岁年龄段，73%(125例)的患者受到PWS的干扰最严重。75%(171名患者)经历过PWS对他们的生活产生负面影响，62%(106名患者)确信如果他们的PWS能够被消除，他们的生活将发生根本性的改变。47%(87例)的患者自尊低下(与同年龄段相比)。根据样本中28%(51名患者)的说法，PWS使他们的学校生活和教育变得更加困难。在患者家属中，76%(106名亲属)认为患者在某种程度上受到了PWS的负面影响。在激光治疗后，所有这些痛苦参数都得到了显著缓解，同时需要掩盖他们的PWS，他们对陷入冲突或争吵的恐惧，他们的社会关系，与异性的问题，愤怒发作，抑郁和来自同龄人的异常反应。我们认为，在尽可能早的年龄开始治疗PWS(包括非面部)可能会有潜在的心理益处。
There is a commonly held conception among referring doctors that very small children with congenital capillary malformations, so‐called port‐wine stains (PWS), should not be treated until they are older. Our experience leads us to believe that the flashlamp pulsed dye laser is a safe and effective treatment even for infants. We have not encountered any persistent pigmentation changes, post‐treatment scarring or other adverse effects. It is important to quantify the psychological disabilities associated with this disorder to assess the need for and the benefits of treatment. Questionnaires were distributed to 259 patients and their families who visited our clinic because of their PWS. Patients who were on the waiting list for laser treatment, undergoing treatment or had completed their treatment received different questionnaires. The response rate was 89%. High emotional distress was encountered. During the age period 10–20 years, 73% (125 patients) were most disturbed by their PWS. That the PWS influenced their life negatively was experienced by 75% (171 patients), and 62% (106 patients) were convinced that their life would change radically if their PWS could be eliminated. Suffering from low self‐esteem (in comparison with the same age group) was reported by 47% (87 patients). The PWS made their school life and education more difficult according to 28% (51 patients) of the sample. Of the families of patients, 76% (106 relatives) considered the patient to be negatively affected in some way by the PWS. After the laser treatment, all of these distress parameters were significantly relieved, together with a need to cover their PWS, their fear of going into conflict or quarrels, their social relationships, problems with the opposite sex, rage attacks, depressions and abnormal reactions from their peers. We believe there is potential psychological benefit in starting the treatments of PWS (including non‐facial) at as early an age as possible.
使用闪光灯脉冲可调谐染料激光器治疗患有葡萄酒色斑的儿童。
DOI：
10.1056/nejm198902163200702
发表时间：
1989
期刊：
The New England journal of medicine
影响因子：
--
作者：
Tan,OT;Sherwood,K;Gilchrest,BA
通讯作者：
Gilchrest,BA