Health care improvement and survivorship priorities of colorectal cancer survivors: findings from the PORTAL colorectal cancer cohort survey.
Health care improvement and survivorship priorities of colorectal cancer survivors: findings from the PORTAL colorectal cancer cohort survey.
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DOI：
10.1007/s00520-018-4299-6
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发表时间：
2019-01
期刊：
影响因子：
--
通讯作者：
Feigelson HS
中科院分区：
文献类型：
--
作者：
McMullen C;Bulkley J;Corley DA;Madrid S;Davis AQ;Hesselbrock R;Kurtilla F;Anderson CK;Arterburn D;Somkin CP;Pawloski PA;Ghai NR;Feigelson HS
很少有人口水平的调查探讨了以患者为中心的优先事项，以改善结直肠癌幸存者的护理。与患者合作，我们设计了一项调查，以确定护理改善和生存优先事项。我们调查了2010-2014年期间诊断的4，000名患者的随机样本，这些患者来自一个回顾性的、基于人群的结直肠癌幸存者队列。该调查包括两个多重回答的问题：“你会改变你的癌症诊断和治疗经验吗？”以及“自确诊以来，你最大的健康或生活方式问题（除了癌症）是什么？”多变量回归分析确定了与认可医疗保健经验和生存率相关的特征。调查答复率为50.2%（2，000/3，986）。53%的人报告至少有一个未满足的需求，最常见的是关于治疗后生活的更多信息（26.7%）。直肠癌的幸存者比结肠癌的受访者报告了更多的需求;有色人种比非西班牙裔白人报告了更多的需求;没有高中文凭的人比受过更多教育的人报告了更多的需求。担心复发是最常见的健康/生活方式问题（58.9%）。65岁以下的受访者比74岁以上的受访者更经常报告几乎所有的健康/生活方式问题。直肠癌幸存者比结肠癌幸存者更关注活动限制、变化、身体功能和外观。有色人种比非西班牙裔白人更有可能报告财务问题。最需要干预的是直肠癌幸存者，少数种族/民族背景的幸存者和年轻的幸存者。低教育程度的幸存者和那些患有更高阶段疾病的人也可以受益。
Few population-level surveys have explored patient-centered priorities for improving colorectal cancer survivors’ care. Working with patients, we designed a survey to identify care improvement and survivorship priorities. We surveyed a random sample of 4,000 patients from a retrospective, population-based cohort of colorectal cancer survivors diagnosed during 2010–2014. The survey included two multiple response questions: “What would you have changed about your cancer diagnosis and treatment experience?” and “What are your biggest health or lifestyle concerns (other than having cancer) since being diagnosed?” Multivariable regression identified characteristics associated with endorsement of health care experience and survivorship concerns. Survey response rate was 50.2% (2,000/3,986). 53% reported at least one unmet need, most commonly for more information about life after treatment (26.7%). Survivors of rectal cancer reported more needs than respondents with colon cancer; persons of color reported more needs than non-Hispanic whites; individuals without high school diplomas reported more needs than individuals with more education. Fear of recurrence was the most common health/lifestyle concern (58.9%). Respondents under age 65 reported nearly all health/lifestyle concerns more often than respondents over age 74. Rectal cancer survivors reported more concerns about activity limitation, changes and body function and appearance than colon cancer survivors. Persons of color were more likely to report financial concerns than non-Hispanic whites. The greatest needs for intervention are among survivors of rectal cancer, survivors of minority racial/ethnic background, and survivors of younger age. Survivors with low educational attainment, and those with higher stage disease could also benefit.
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影响因子：
5.7
作者：
Naylor, Keith;Ward, James;Polite, Blase N.
通讯作者：
Polite, Blase N.
影响因子：
3.9
作者：
McMullen CK;Bulkley JE;Altschuler A;Wendel CS;Grant M;Hornbrook MC;Sun V;Krouse RS
通讯作者：
Krouse RS
影响因子：
2.9
作者：
Corner, Jessica;Wagland, Richard;Richards, Sir Mike
通讯作者：
Richards, Sir Mike
DOI：
10.13063/2327-9214.1049
发表时间：
2014-01-01
期刊：
EGEMS (Washington, DC)
影响因子：
--
作者：
Ross, Tyler R;Ng, Daniel;Steiner, John F
通讯作者：
Steiner, John F
影响因子：
6.2
作者：
Burg, Mary Ann;Adorno, Gail;Sharma, Dinghy Kristine B.
通讯作者：
Sharma, Dinghy Kristine B.