Parent-Reported Family Functioning Among Children With Cleft Lip/Palate.
Parent-Reported Family Functioning Among Children With Cleft Lip/Palate.
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DOI：
10.1597/14-050
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发表时间：
2015-11
期刊：
影响因子：
--
通讯作者：
Broder HL
中科院分区：
文献类型：
--
作者：
Crerand CE;Rosenberg J;Magee L;Stein MB;Wilson-Genderson M;Broder HL
检查与唇腭裂和/或腭裂（CL/P）青少年的社会人口统计学和临床特征相关的家庭功能。横向多点调查。六个美国唇腭裂中心。1200名CL/P儿童及其父母的多元化样本。父母完成了家庭环境量表（FES），该量表评估了家庭功能的三个领域：凝聚力（或亲密度），表达力（情感的开放表达）和冲突。还评估了人口统计学和临床特征，包括人种、种族、保险类型和手术建议。与正常样本相比，为CL/P（平均年龄= 11.6岁）青年寻求团队评价的家庭的FES评分在平均范围内。接受手术建议的家庭的FES评分也在平均范围内，但与接受美容手术的家庭相比，接受功能性手术的家庭报告了更大的凝聚力，表达力和更少的冲突（P <0.05）。对于凝聚力和表现力，种族（P = 0.012，P <0.0001，分别）和种族（P = 0.004，P <0.0001，分别）的显着主效应被发现，但没有为他们的相互作用。在冲突域上没有发现显著差异。有私人保险的家庭比有公共保险的家庭有更大的凝聚力（P <0.001）和表达力（P <0.001）。各领域的家庭功能处于平均水平。然而，观察到的人种、种族、保险类型和手术建议的差异可能需要在患者和家属的临床管理中加以考虑。
To examine family functioning related to sociodemographic and clinical characteristics in youth with cleft lip and/or palate (CL/P). Cross-sectional, multisite investigation. Six U.S. cleft centers. A diverse sample of 1200 children with CL/P and their parents. Parents completed the Family Environment Scale (FES), which assesses three domains of family functioning: cohesion (or closeness), expressiveness (open expression of feelings), and conflict. Demographic and clinical characteristics were also assessed including race, ethnicity, type of insurance, and surgical recommendations. The FES scores for families seeking team evaluations for their youth with CL/P (mean age = 11.6 years) fall within the average range compared with normative samples. Families receiving surgical recommendations for their youth also had FES scores in the average range, yet families of children recommended for functional surgery reported greater cohesion, expressiveness, and less conflict compared with those recommended for aesthetic surgery (P < .05). For cohesion and expressiveness, significant main effects for race (P = .012, P < .0001, respectively) and ethnicity (P =.004, P < .0001, respectively) were found but not for their interaction. No significant differences were found on the conflict domain. Families with private insurance reported significantly greater cohesion (P < .001) and expressiveness (P < .001) than did families with public insurance. Family functioning across domains was in the average range. However, observed differences by race, ethnicity, type of insurance, and surgical recommendation may warrant consideration in clinical management for patients and families.
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影响因子：
8
作者：
Flores, Glenn;Tomany-Korman, Sandra C.
通讯作者：
Tomany-Korman, Sandra C.
影响因子：
12.7
作者：
Broder, Hillary L.;Wilson-Genderson, Maureen;Sischo, Lacey
通讯作者：
Sischo, Lacey
影响因子：
5.9
作者：
Holmes, CS;Yu, ZN;Frentz, J
通讯作者：
Frentz, J
影响因子：
4
作者：
Greenberger, E;Chen, CS
通讯作者：
Chen, CS
DOI：
10.1097/00004583-199611000-00023
发表时间：
1996-11-01
影响因子：
13.3
作者：
Fisman, S;Wolf, L;Szatmari, P
通讯作者：
Szatmari, P