Defining end of life in dementia: A systematic review.
Defining end of life in dementia: A systematic review.
复制标题
DOI：
10.1177/02692163211025457
复制
发表时间：
2021-12
影响因子：
4.4
通讯作者：
Davies N
中科院分区：
文献类型：
--
作者：
Browne B;Kupeli N;Moore KJ;Sampson EL;Davies N
痴呆症是一种限制生命的疾病，影响着全球5000万人。现有的生命终结定义并不能解释痴呆症的不确定轨迹。痴呆症患者可能会在晚期生活数年，甚至在达到痴呆症晚期之前死亡。确定如何测量和概念化痴呆症患者的生命结束，并确定有助于确定痴呆症患者生命结束的因素。系统综述和叙述性综合。于2020年4月检索了电子数据库MEDLINE、EMBASE、PsychInfo和CINAHL。符合条件的研究包括患有任何痴呆症诊断的成年人，照顾痴呆症患者的家庭护理人员和医疗保健专业人员以及痴呆症生命结束的定义。33项研究符合纳入标准。使用来自经验证工具的各种截止评分、估计值和描述性定义来定义寿命终止。大多数研究使用单一的测量工具，侧重于认知或功能。在如何定义生命结束方面，各护理机构没有任何模式。医疗保健专业人员和家庭护理人员很难识别痴呆症患者何时接近生命的尽头。仅关注认知和功能衰退的临终关怀和研究可能无法认识到与痴呆症和生命终结相关的复杂性和未满足的需求。研究和临床实践应该对痴呆症患者采取基于需求的方法，而不是根据疾病的阶段来定义生命的终结。
Dementia is a life-limiting condition that affects 50 million people globally. Existing definitions of end of life do not account for the uncertain trajectory of dementia. People living with dementia may live in the advanced stage for several years, or even die before they reach the advanced stage of dementia. To identify how end of life in people with dementia is measured and conceptualised, and to identify the factors that contribute towards identifying end of life in people with dementia. Systematic review and narrative synthesis. Electronic databases MEDLINE, EMBASE, PsychInfo and CINAHL, were searched in April 2020. Eligible studies included adults with any dementia diagnosis, family carers and healthcare professionals caring for people with dementia and a definition for end of life in dementia. Thirty-three studies met the inclusion criteria. Various cut-off scores from validated tools, estimated prognoses and descriptive definitions were used to define end of life. Most studies used single measure tools which focused on cognition or function. There was no pattern across care settings in how end of life was defined. Healthcare professionals and family carers had difficulty recognising when people with dementia were approaching the end of life. End-of-life care and research that focuses only on cognitive and functional decline may fail to recognise the complexities and unmet needs relevant to dementia and end of life. Research and clinical practice should adopt a needs-based approach for people with dementia and not define end of life by stage of disease.
登录
查看更多内容
DOI：
10.1177/1471301215605630
发表时间：
2017-07-01
影响因子：
2.4
作者：
Andrews, Sharon;McInerney, Fran;Robinson, Andrew
通讯作者：
Robinson, Andrew
影响因子：
4.7
作者：
Cohen, Simon M.;Volandes, Angelo E.;Mitchell, Susan L.
通讯作者：
Mitchell, Susan L.
影响因子：
6.3
作者：
Faes, Kristof;Cohen, Joachim;Annemans, Lieven
通讯作者：
Annemans, Lieven
DOI：
10.1177/1533317514539543
发表时间：
2014-12-01
影响因子：
3.4
作者：
Aminoff, Bechor Zvi
通讯作者：
Aminoff, Bechor Zvi
影响因子：
3.4
作者：
Davies, Nathan;Iliffe, Steve;Walters, Kate
通讯作者：
Walters, Kate