Catalyzing Social Support for Breast Cancer Patients.

Catalyzing Social Support for Breast Cancer Patients.
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DOI:
10.1145/1753326.1753353
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发表时间:
2010-04
期刊:
Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference
影响因子:
--
通讯作者:
Pratt W
Pratt W
中科院分区:
其他
文献类型:
--
作者:
Skeels MM;Unruh KT;Powell C;Pratt W

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社会支持是一个关键的,但未充分利用的资源时,接受癌症护理。在两种情况下会出现利用不足的情况:(a)当患者未能从家人和朋友那里寻求信息、物质援助和情感支持时;或(B)当家人和朋友未能满足患者的个性化需求和偏好时。社交网络在及时了解病人的状态时是最有效的,但更新每个人需要病人付出的努力。为了改善这种情况,我们描述了我们的参与式设计活动与乳腺癌患者的结果。在这个过程中,我们发现了社交网络需要保持知情的信息,以及技术可以帮助打破的社交支持障碍。我们使用Facebook Connect构建的原型包括明确的功能,以减少这些障碍,从而促进与强大的社会支持相关的健康结果。
Social support is a critical, yet underutilized resource when undergoing cancer care. Underutilization occurs in two conditions: (a) when patients fail to seek out information, material assistance, and emotional support from family and friends or (b) when family and friends fail to meet the individualized needs and preferences of patients. Social networks are most effective when kept up to date on the patient’s status, yet updating everyone takes effort that patients cannot always put in. To improve this situation, we describe the results of our participatory design activities with breast cancer patients. During this process, we uncovered the information a social network needs to stay informed as well as a host of barriers to social support that technology could help break down. Our resulting prototype, built using Facebook Connect, includes explicit features to reduce these barriers and thus, promote the healthy outcomes associated with strong social support.
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