Struggles, strengths, and strategies: an ethnographic study exploring the experiences of adolescents living with an ostomy.
Struggles, strengths, and strategies: an ethnographic study exploring the experiences of adolescents living with an ostomy.
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DOI：
10.1186/1477-7525-6-114
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发表时间：
2008-12-17
影响因子：
3.6
通讯作者：
Griffiths AM
中科院分区：
文献类型：
--
作者：
Nicholas DB;Swan SR;Gerstle TJ;Allan T;Griffiths AM
需要造口术的IBD青少年患者的围手术期需求可能超过其他腹部大手术患者。这一程序需要持续和警惕的日常护理和管理。胃肠道症状和并发症给年轻患者带来心理和社会压力，手术导致身体形象改变和日常自我护理方案。本研究旨在探讨青少年造口手术后的经验和生活质量。人种学访谈和随后的焦点小组进行了20名青少年造口术或J型袋正在治疗的医院为生病的儿童在多伦多，加拿大。访谈录逐字转录，并受到主题生成。研究结果表明，青少年是深刻的影响，他们的造口术。青少年传递力量以及调整斗争。已确定的影响包括身体侵入和身体形象的变化，独立性下降，造口的秘密，随着时间的推移调整，家庭的挑战，以及建设性地向前迈进的战略。影响解决的重要性，确保有意义的机会来理解和重构疾病的压力。目前的临床挑战涉及促进这些青少年及其家庭的健康自尊和心理社会调整。找到有效的方法来减少压力和尴尬，重塑个人羞耻，构成重要的临床优先事项。朋辈支持和家庭对话的机会，可能有助消除这些青少年的忧虑，减轻他们的负担。提倡灵活和资金充足的资源，以提高生活质量。
Adolescents with IBD requiring ostomy surgery experience perioperative needs that may exceed those of patients experiencing other major abdominal surgery. This procedure requires ongoing and vigilant daily care and management. Gastrointestinal symptoms and complications impose psychological and social stresses on young patients, and the procedure results in body image changes and daily regimens of self-care. This study aimed to explore adolescents' experiences and quality of life following ostomy surgery. Ethnographic interviews and a subsequent focus group were conducted with 20 adolescents with an ostomy or j-pouch being treated at the Hospital for Sick Children in Toronto, Canada. Interviews were transcribed verbatim and subjected to theme generation. Findings suggest that adolescents are profoundly affected by their ostomy. Adolescents convey strength as well as adjustment struggles. Identified impacts include body intrusion and body image changes, decreased independence, secrecy about the ostomy, adjustment over time, challenges for the family, and strategies for constructively moving forward. Implications address the importance of ensuring meaningful opportunities to understand and reframe the stresses of illness. An ongoing clinical challenge involves the promotion of a healthy self-esteem and psychosocial adjustment for these adolescents and their families. Finding effective ways to minimize stress and embarrassment and reframe personal shame, constitute important clinical priorities. Opportunities for peer support and family dialogue may assist in clarifying worries and easing the burden carried by these young persons. Flexible and adequately funded resources are advocated in fostering quality of life.
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影响因子：
2.9
作者：
KITZINGER, J
通讯作者：
KITZINGER, J
DOI：
10.1016/s1071-5754(99)90018-9
发表时间：
1999-03-01
期刊：
Journal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society
影响因子：
--
作者：
Erwin-Toth, P
通讯作者：
Erwin-Toth, P
影响因子：
2.4
作者：
Hilsden, RJ;Verhoef, MJ;Pocobelli, G
通讯作者：
Pocobelli, G
影响因子：
3.3
作者：
SIMMONS, RJ;COREY, M;LEVISON, H
通讯作者：
LEVISON, H
影响因子：
3.8
作者：
Brydolf, M;Segesten, K
通讯作者：
Segesten, K