Virtual Research with Urban Native Young Women: Cautionary Tales in the Time of a Pandemic.

Virtual Research with Urban Native Young Women: Cautionary Tales in the Time of a Pandemic.
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DOI:
10.1353/cpr.2022.0041
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发表时间:
2022
影响因子:
1.1
通讯作者:
Kaufman, Carol E.
Kaufman, Carol E.
中科院分区:
医学4区
文献类型:
--
作者:
Tuitt, Nicole R.;Shrestha, Umit;Reed, Nicole;Moore, Roland S.;Sarche, Michelle;Kaufman, Carol E.

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基于社区的参与性研究(CBPR)是一种特别有效的方法,可以对遭受虐待和不道德研究的美国印第安人和阿拉斯加原住民(AIAN)社区进行研究。与部落成员和社区的面对面会议、讨论和接触已成为AIAN社区CBPR的重要组成部分。随着新冠肺炎疫情的到来,美国国际癌症协会的社区已经采取行动,关闭或大幅减少面对面的活动,排除了面对面的研究方法。目前与AIAN社区进行研究的最佳做法是面对面参与;在利用虚拟技术让AIAN社区参与研究方面几乎没有指导。我们的研究名为Native Wyse Choose,是在疫情大流行之前故意设计成虚拟的,包括招募、登记、干预和对城市AIAN年轻女性的评估。我们与AIAN社区一起展示了我们对虚拟研究的看法,包括我们的咨询合作伙伴在我们项目形成阶段为虚拟干预设计和招募方法提供信息方面的关键作用。在研究团队和社区合作伙伴中进行体验性反思。虚拟技术,如视频会议、社交媒体和移动健康应用程序,提供了许多工具来接触社区,特别是在大流行期间。与AIAN社区一起进行研究的虚拟化需要在时间、资源和规划方面进行大量投资,以减少劣势;它不能完全取代基于面对面的CBPR方法,但可能为研究提供许多优势和独特优势,特别是在大流行期间。
Community Based Participatory Research (CBPR) is a particularly powerful approach to research with American Indian and Alaska Native (AIAN) communities who have been subject to a history of mistreatment and unethical research. In person meetings, discussion, and engagement with tribal members and the community have become an essential component of CBPR in AIAN communities. With the advent of the COVID-19 pandemic, AIAN communities have moved to close or sharply curtail in-person activities, precluding in-person research methods. Current best practices for research with AIAN communities assumes in-person engagement; little guidance exists on engaging AIAN communities in research using virtual technologies. Our study, Native WYSE CHOICES, was intentionally designed prior to the pandemic to be virtual, including recruitment, enrollment, intervention, and assessment with urban AIAN young women. We present our perspectives on virtual research with AIAN communities, including the critical role of our advisory partners to inform the virtual intervention design and recruitment methods in the formative stages of our project. Experiential reflection among research team and community partners. Virtual technologies, such as videoconferencing, social media, and mobile health apps, offer many tools to reach communities, especially in a pandemic. The virtualization of research with AIAN communities requires a significant investment in time, resources and planning to mitigate disadvantages; it cannot fully replace in-person-based CBPR approaches, but may offer many strengths and unique advantages for research, especially in a pandemic.
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