Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.

Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.
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DOI:
10.5820/aian.2802.2021.77
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发表时间:
2021
期刊:
American Indian and Alaska native mental health research (Online)
影响因子:
--
通讯作者:
Soto C
Soto C
中科院分区:
其他
文献类型:
--
作者:
Haozous EA;Lee J;Soto C

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本文通过部落主权的透镜探讨了美国城市印第安人和阿拉斯加原住民(AI/AN)研究的伦理问题。美国有574个联邦政府承认的部落。联邦政府承认这些部落中的每一个都具有主权地位,这是一个重要的政治名称,确保影响部落民族的决定必须在与这些民族协商后作出。大多数印第安人/原住民居住在其指定的部落土地之外,但他们的主权往往只有在居住在部落土地上时才得到承认。这些城市AI/AN仍然被认为是其主权国家的公民,但他们缺乏对居住在部落土地上的人的保护,包括围绕其部落社区研究的保护。我们探讨了贝尔蒙特报告和相关文件,并证明了它们在考虑保护城市人工智能/人工神经网络所特有的文化和伦理问题方面的不足。我们还提供了几个解决方案,以帮助指导未来的机构政策,有关尊重土著数据主权的城市AI/AN的研究,包括咨询,与社区咨询委员会的合作,数据使用协议的就业,并确保知情同意。
This paper examines the ethical issues underlying research with urban American Indians and Alaska Natives (AI/ANs) through the lens of tribal sovereignty. There are 574 federally recognized tribes within the United States. Each of those tribes is recognized by the federal government as having sovereign status, an important political designation that ensures that decisions impacting tribal peoples must be made after consultation with those nations. Most AI/AN people live away from their designated tribal lands, yet their sovereign rights are frequently only recognized when living on tribal lands. These urban AI/ANs are still considered citizens of their sovereign nations, yet they lack the protections afforded to those who live on tribal lands, including protections surrounding research with their tribal communities. We explore the Belmont Report and related documents and demonstrate their inadequacy in considering the cultural and ethical concerns specific to protecting urban AI/ANs. We also provide several solutions to help guide future institutional policies regarding research with urban AI/ANs that honors Indigenous data sovereignty, including consultation, partnership with community advisory boards, employment of data use agreements, and ensuring informed consent.
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