Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life.
Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life.
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DOI：
10.1073/pnas.2115860119
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发表时间：
2022-01-25
影响因子：
11.1
通讯作者：
Phillippy AM
中科院分区：
文献类型：
--
作者：
Mc Cartney AM;Anderson J;Liggins L;Hudson ML;Anderson MZ;TeAika B;Geary J;Cook-Deegan R;Patel HR;Phillippy AM
基因组学领域从数据共享的“开放”方式中受益匪浅。然而，随着越来越多的序列信息被创建和存储，以及越来越多的国际基因组学努力，开放的公平性受到了质疑。《联合国生物多样性公约》旨在制定和通过一项关于在各签署方之间获取和分享序列信息的标准政策。这种标准化将对基因组学研究产生深远影响，需要对开放数据共享有一个新的定义。重新定义开放并不是没有根据的，因为它的限制无意中给包括土著人民在内的一些人带来了接触障碍。本评论对渴望保护和养护全球生物多样性(包括土著动植物)的研究人员所面临的开放的关键挑战提供了洞察，并提出了直接、实用的解决方案，如果实施，将使基因组学社区具备尊重保护全球生物多样性所需的多样性和包容性。
The field of genomics has benefited greatly from its “openness” approach to data sharing. However, with the increasing volume of sequence information being created and stored and the growing number of international genomics efforts, the equity of openness is under question. The United Nations Convention of Biodiversity aims to develop and adopt a standard policy on access and benefit-sharing for sequence information across signatory parties. This standardization will have profound implications on genomics research, requiring a new definition of open data sharing. The redefinition of openness is not unwarranted, as its limitations have unintentionally introduced barriers of engagement to some, including Indigenous Peoples. This commentary provides an insight into the key challenges of openness faced by the researchers who aspire to protect and conserve global biodiversity, including Indigenous flora and fauna, and presents immediate, practical solutions that, if implemented, will equip the genomics community with both the diversity and inclusivity required to respectfully protect global biodiversity.
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影响因子：
1.1
作者：
Abadie, Roberto;Heaney, Kathleen
通讯作者：
Heaney, Kathleen
DOI：
10.1159/000092651
发表时间：
2006-01-01
期刊：
COMMUNITY GENETICS
影响因子：
--
作者：
Arbour, L;Cook, D
通讯作者：
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影响因子：
3.1
作者：
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通讯作者：
Garrison, Nanibaa' A.
影响因子：
1.6
作者：
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通讯作者：
Steeves, Tammy
影响因子：
1.9
作者：
Geary, Janis;Reay, Trish;Bubela, Tania
通讯作者：
Bubela, Tania