Evaluation of an activities of daily living scale for adolescents and adults with developmental disabilities.

Evaluation of an activities of daily living scale for adolescents and adults with developmental disabilities.
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DOI:
10.1016/j.dhjo.2012.08.005
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发表时间:
2013-01
影响因子:
4.5
通讯作者:
Mailick MR
Mailick MR
中科院分区:
医学2区
文献类型:
--
作者:
Maenner MJ;Smith LE;Hong J;Makuch R;Greenberg JS;Mailick MR

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活动限制是残疾的一个重要且有用的方面,但对于患有发育障碍的青少年和成人来说,活动限制的有效衡量标准很少。描述针对患有发育障碍的青少年和成人的魏斯曼日常生活活动量表 (W-ADL) 的制定,并根据一套既定标准系统地评估其测量特性。 W-ADL 在四组纵向研究的患有发育障碍的青少年和成人中进行:406 名患有自闭症;406 名患有自闭症; 147 患有脆性 X 综合征; 169 名患有唐氏综合症,292 名患有其他或不明原因的智力障碍。 W-ADL 包含 17 项活动,每项活动均按 3 级评分(0=“根本不做”、1=“在帮助下做”、2=“独立”),并使用一组标准标准来评估其测量属性。在所有残疾群体中,Cronbach 的 alpha 范围为 0.88 至 0.94,单因素结构最为简约。随着时间的推移,W-ADL 是可靠的,加权 kappas 介于 0.92 和 0.93 之间。标准和建构有效性通过与 Vineland Screener 的实质性关联、喘息服务的需求、护理负担和竞争性就业来支持。不存在地板或天花板效应。根据母亲报告的智力障碍程度(轻度、中度、重度、极重度),W-ADL 评分存在显着的组间差异。 W-ADL 超过了作者评估的每个质量标准的推荐阈值。这一免费工具是日常生活活动的有效衡量标准,可用于有关发育障碍青少年和成人的调查和流行病学研究。
Activity limitations are an important and useful dimension of disability, but there are few validated measures of activity limitations for adolescents and adults with developmental disabilities. To describe the development of the Waisman Activities of Daily Living (W-ADL) Scale for adolescents and adults with developmental disabilities, and systematically evaluate its measurement properties according to an established set of criteria. The W-ADL was administered among four longitudinally-studied groups of adolescents and adults with developmental disabilities: 406 with autism; 147 with fragile-X syndrome; 169 with Down syndrome, and 292 with intellectual disability of other or unknown origin. The W-ADL contains 17 activities and each is rated on a 3-point scale (0=“does not do at all”, 1=“does with help”, 2=“independent”), and a standard set of criteria were used to evaluate its measurement properties. Across the disability groups, Cronbach’s alphas ranged from 0.88 to 0.94, and a single-factor structure was most parsimonious. The W-ADL was reliable over time, with weighted kappas between 0.92 and 0.93. Criterion and construct validity were supported through substantial associations with the Vineland Screener, need for respite services, caregiving burden, and competitive employment. No floor or ceiling effects were present. There were significant group differences in W-ADL scores by maternally-reported level of intellectual disability (mild, moderate, severe, profound). The W-ADL exceeded the recommended threshold for each quality criterion the authors evaluated. This freely-available tool is an efficient measure of activities of daily living for surveys and epidemiological research concerning adolescents and adults with developmental disabilities.
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