Conceptual Framework for Understanding the Transition of Children with Severe Motor and Intellectual Disabilities to Adult Life after Graduation
Conceptual Framework for Understanding the Transition of Children with Severe Motor and Intellectual Disabilities to Adult Life after Graduation
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了解严重运动和智力障碍儿童毕业后向成人生活过渡的概念框架
DOI：
10.1080/1034912x.2020.1843605
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发表时间：
2020
期刊：
影响因子：
--
通讯作者：
Yuichi Nakayama
中科院分区：
文献类型：
--
作者：
Masamitsu Kobayashi;Izumi Sezai;Takako Ishikawa;濱田真由美;金山三恵子;Yuichi Nakayama
患有严重运动和智力残疾的儿童在毕业后从童年过渡到成人生活时面临挑战，包括因继发性残疾加速而导致的健康状况变化，从儿科向成人医疗保健的过渡，以及高中毕业后过渡到他们度过的地方。然而，目前还没有概念框架，可从多方面的角度探讨这一问题。本文献综述旨在使用国际功能、残疾和健康分类：儿童和青年版（ICF-CY）编码系统填补这一空白。通过描述性分析，ICF-CY代码与先前研究确定的与CSMID相关的因素进行了比较。然后提取相关的ICF-CY代码。ICF-CY的身体功能和身体结构、活动、参与和环境因素领域中的几个代码被认为对理解CSMID很重要。同时，也发现了一些相关的个人因素。使用新创建的概念框架，可以更有效地支持CSMID，让他们过上更充实的生活。
Children with severe motor and intellectual disabilities (CSMID) face challenges in the transition from childhood to adult life after graduation, including changing health conditions caused by the acceleration of secondary disabilities, transition from paediatric to adult health care, and transition to places where they spend time after graduation from high school. However, no conceptual framework is currently available to explore this issue from a multifaceted perspective. This literature review aimed to fill this gap using the International Classification of Functioning, Disability and Health: Children & Youth version (ICF-CY) coding system. Through a descriptive analysis, ICF-CY codes were compared with the factors identified as relevant to CSMID by previous studies. The related ICF-CY codes were then extracted. Several codes within the ICF-CY domains of Body Functions and Body Structures, Activities, Participation, and Environmental Factors were thought to be important to understand CSMID. Some relevant Personal Factors were identified as well. Using the newly created conceptual framework, the support for CSMID can be more effective, allowing them to live a more fulfiling life.
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