Role of patient and public involvement in implementation research: a consensus study.
Role of patient and public involvement in implementation research: a consensus study.
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DOI：
10.1136/bmjqs-2017-006954
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发表时间：
2018-10
影响因子：
5.4
通讯作者：
McEachan RRC
中科院分区：
文献类型：
--
作者：
Gray-Burrows KA;Willis TA;Foy R;Rathfelder M;Bland P;Chin A;Hodgson S;Ibegbuna G;Prestwich G;Samuel K;Wood L;Yaqoob F;McEachan RRC
患者和公众参与（PPI）通常是研究经费的基本要求。临床研究（通常关注患者）和实施研究（通常关注健康专业行为）之间存在区别。 PPI 在后一个领域中的作用尚不确定。我们探索并定义了 PPI 在实施研究中的作用，为相关的良好实践指南提供信息。我们采用了结构化共识流程，使用了由九名经验丰富的 PPI 和两名研究人员组成的便捷样本小组。我们利用现有文献确定了 21 个 PPI 研究角色。该小组在网上独立评估了他们在实施和临床研究方面与角色的一致性。在对所有职位进行第二次在线评级之前，在面对面会议上讨论了分歧。计算中位数分数并召开最终会议来审查调查结果并考虑建议。十名小组成员完成了共识过程。对于临床研究，在整个研究过程的大部分时间里，PPI 的作用都得到了强有力的支持和共识。对于实施研究，有8个角色获得共识并得到强烈支持，7个角色获得共识但支持较弱，6个角色没有达成共识。与临床研究相比，关于 PPI 在实施研究中的作用存在更多分歧。 PPI 被评为对实施研究的设计和管理的贡献小于对临床研究的贡献。 PPI 的角色需要根据研究的性质进行调整，以确保真实和适当的参与。我们提供一个框架来指导实施研究中 PPI 的规划、实施和报告，并鼓励进一步研究来评估其使用。
Patient and public involvement (PPI) is often an essential requirement for research funding. Distinctions can be drawn between clinical research, which generally focuses on patients, and implementation research, which generally focuses on health professional behaviour. There is uncertainty about the role of PPI in this latter field. We explored and defined the roles of PPI in implementation research to inform relevant good practice guidance. We used a structured consensus process using a convenience sample panel of nine experienced PPI and two researcher members. We drew on available literature to identify 21 PPI research roles. The panel rated their agreement with roles independently online in relation to both implementation and clinical research. Disagreements were discussed at a face-to-face meeting prior to a second online rating of all roles. Median scores were calculated and a final meeting held to review findings and consider recommendations. Ten panellists completed the consensus process. For clinical research, there was strong support and consensus for the role of PPI throughout most of the research process. For implementation research, there were eight roles with consensus and strong support, seven roles with consensus but weaker support and six roles with no consensus. There were more disagreements relating to PPI roles in implementation research compared with clinical research. PPI was rated as contributing less to the design and management of implementation research than for clinical research. The roles of PPI need to be tailored according to the nature of research to ensure authentic and appropriate involvement. We provide a framework to guide the planning, conduct and reporting of PPI in implementation research, and encourage further research to evaluate its use.
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影响因子：
3.2
作者：
Armstrong, Natalie;Herbert, Georgia;Martin, Graham
通讯作者：
Martin, Graham
影响因子：
105.7
作者：
Staniszewska, S.;Brett, J.;Tysall, C.
通讯作者：
Tysall, C.
DOI：
10.1186/s13012-016-0387-5
发表时间：
2016-02-29
期刊：
Implementation science : IS
影响因子：
--
作者：
Willis TA;Hartley S;Glidewell L;Farrin AJ;Lawton R;McEachan RR;Ingleson E;Heudtlass P;Collinson M;Clamp S;Hunter C;Ward V;Hulme C;Meads D;Bregantini D;Carder P;Foy R;ASPIRE programme
通讯作者：
ASPIRE programme
影响因子：
2.8
作者：
Domecq, Juan Pablo;Prutsky, Gabriela;Murad, Mohammad Hassan
通讯作者：
Murad, Mohammad Hassan
影响因子：
168.9
作者：
Tricco, Andrea C.;Ivers, Noah M.;Shojania, Kaveh
通讯作者：
Shojania, Kaveh